MEDICAL MATTERS

  • Medical Matters features questions asked by Members of the ME Association on health-related topics.
  • Dr Charles Shepherd and the ME Association's other advisers answer these questions by sharing their expert knowledge.
  • Medical Matters is based on the popular ‘Ask the Doctor’ series in ME Essential magazine.
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Questions in the Category: OT

Caring: Severe ME/CFS

ME Essential Autumn 2017

I’m becoming increasingly concerned about the situation that my sister and her husband find themselves in. They are both in their mid-sixties and both have non-ME/CFS health problems. They are also looking after their son – who is in his mid-thirties and has had ME/CFS for well over 10 years – with no other practical or financial help. Their son’s state of health has steadily declined in the past year. He no longer works, is largely housebound and is dependent on his elderly parents for most of his care. Like so many other people with severe ME/CFS, he has lost most of his friends and has very few visitors. My main concern is that his parents are finding it increasingly difficult to cope. The GP doesn’t know what to do and I sense that only some form of crisis will make things happen. Do you have any suggestions or do they just have to carry on till the point where they can no longer cope?

Charles Shepherd

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