Birthday summer 2014 aged 11 - before ME vs. Birthday summer 2017 aged 14 (2.5yrs) after ME
I suffer with PEM, confusion, brain fog, nausea and pain in response to things like walking more than 50m or so to sitting upright too long
Feeling like I'm being punished for enjoying an activity or spending time with my family. Feeling ignored by the NHS and UK Government, and being invisible to society. I feel like a burden on society because no one will help me.
I am unable to carry out any form of employment or voluntary work. When I am really poorly it can be very lonely, isolating, and frustrating. During these phases I am housebound.
Me, Kerry, and my little dog Charlie having a day in bed together because of this awful illness
I have severe ME/CFS and this happens to me every time I leave the house, even for the smallest journey