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Questions in the Category: Thyrotoxicosis

Shakiness

ME Essential Summer 2025

I am hoping you can shed some light on two types of shakiness which I've had since a recent relapse of my ME.

Some days I start feeling shaky shortly after getting moving in the morning. It's like I've had a big dose of caffeine (which I definitely haven't) and at its worst my hands will be too shaky to do anything fiddly like sewing but resting is hard because I feel wired with it. It normally fades around the middle of the day. It's intermittent and there are no obvious triggers.

More difficult to describe is a sensation I get sometimes which is more disturbing. It's like an inner wobble, possibly centred around my abdomen. It comes and goes and tends to make me feel vaguely weak. It's possible that one trigger is doing too much but otherwise it's random and can disappear for weeks. I find it difficult because I don't know whether I should be resting more when I have this shakiness or trying to ignore it like a lot of other symptoms.

Worried about weight loss

ME Essential Autumn 2024

I’ve read on the internet that one of the many symptoms of ME is weight loss. My weight has dropped from about 11 stone to just over 9.5 stone over the past six months. I have a reasonable appetite and eat a fairly normal diet. I don’t have any stomach or bowel problems. The fact that I’ve lost quite a bit of weight doesn’t really bother me but why does this occur in ME?

Symptoms: Joint Pain and Irritable Bowel

ME Essential Winter 2021

I know that in addition to all the classic diagnostic symptoms of ME there are a considerable number of other symptoms that can sometimes occur. But should we always go and see our GP every time a new symptom appears? Or when an existing symptom changes character or gets significantly worse? In my case, after several years of having ME, I’ve now developed intermittent joint pains (without any swelling or redness) and bowel symptoms (mainly loose motions with occasional stomach cramps and bloating) that sound like irritable bowel syndrome. I haven’t yet mentioned these symptoms to my new GP – who tends to blame everything on ME! I don’t want to be seen as a hypochondriac, turning up at the doctors every time I don’t feel well. At the same time, I don’t want to find that a new and treatable medical condition is being missed

New Symptoms

ME Essential Winter 2021

I know that in addition to all the well-known symptoms associated with ME/CFS there are a considerable number of other symptoms that can sometimes occur. But when should I go and see my doctor if I develop a new symptom? Or when an existing symptom isn’t quite the same as it used to be? In my case I’ve always had a problem with balance and I know you have described this as ‘walking on rubber’ – which is exactly how it feels at times! However, I’m now having what are best described as occasional dizzy spells where I feel very “off balance”. I also suspect that my hearing isn’t quite as sharp as it used to be. I’ve mentioned this problem to my new GP, who checked my blood pressure, looked inside my ears and said it was probably caused by ME/CFS – but come back if things don’t improve! I don’t want to be seen as a hypochondriac, turning up at the doctors every time I don’t feel well. But at the same time, I don’t want to find that something important, or treatable, is being missed.

Dr Charles Shepherd

Charles Shepherd
ME Essential magazine
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