We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
This week 5 new research studies have been published. We provide a lay summary of several of them.
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
In the last week, 4 new research studies about ME/CFS have been published.
“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”
Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
14,000 people have signed this petition to the European Parliament demanding ME/CFS research.
Meet four teenagers who want to set the world of ME Awareness ablaze. They tell us why!
“I have been classed as a carer to both my mum & brother since I was 3 years old, and this year I will have been suffering from M.E for 17 years.”