Quick update on the situation in Gloucestershire following the BBC news item and where Alex Chalk MP and Sir Geoffrey Clifton-Brown MP have been very helpful. Although their intervention has not resulted in a decision to automatically include anyone with ME/CFS into group 6, it does mean that GPs can use their clinical judgement to […]
News | The ME Association
The vexed question of the failure by many GPs to give people with M.E. a priority for Covid vaccination was covered by this short item on the BBC TV Points West news programme on 4 March 2021. BBC health correspondent Matthew Hill interviewed Stephanie Kempson, who has M.E., about her concerns about not being allowed […]
Dr Charles Shepherd Since January we have been collecting feedback from people with ME/CFS who have had a Covid vaccine. At the start, this was mainly from health and social care workers who have ME/CFS and those over 70 years of age. But with vaccination now being carried out in people who have health conditions […]
Sean O’Neill Dr Shepherd was interviewed by Sean O’Neill for this article which appeared in the print edition of The Times yesterday. It highlights some of the confusion and frustration people with ME/CFS are experiencing when trying to gain priority access to the Covid vaccine. Visit this section of the MEA website to access free […]
Neil Riley, Chairman, ME Association Should people with ME/CFS have the Covid vaccination? That’s a hard but not impossible question to answer. You would not want to get Covid. It’s a terrible disease. You don’t want to make your ME/CFS worse. No one does. And getting the Covid infection on top, would make life even […]
ANS dysfunction can cause dizziness, light-headedness, blurred vision, mental confusion, nausea and feeling faint, or even fainting.
“It’s just a postcode lottery, isn’t it?”, says Claire Tripp, whose 19-year-old daughter Emma has severe ME.
“The people who have been shouting about M.E. and CFS for the last 20 years are suddenly being heard.”
The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!
Paramedic’s children want to raise lots of money for ME research
Contact Lee on Instagram at stammertime10 if you would like to buy one of his prints.
A simple phone call or email – and GiveACar will relieve you of all responsibility for that troublesome car, van or motorbike.
Claire Ayshford Smy tells us how she’s kept her quiz nights happy and hopeful
“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
Our medical adviser sums up what’s happening with respect to Covid-19 vaccine priority in England, Wales and Scotland.
Joe Rowsell walked over 60 miles overnight in freezing weather to raise money for our Ramsay Research Fund.
Dr Charles Shepherd says he believes the medical world is now taking post viral fatigue very seriously.
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.