MEDICAL MATTERS
- Medical Matters features questions asked by Members of the ME Association on health-related topics.
- Dr Charles Shepherd and the ME Association's other advisers answer these questions by sharing their expert knowledge.
- Medical Matters is based on the popular ‘Ask the Doctor’ series in ME Essential magazine.
- It is a free resource that supplements the detailed information contained in the full range of literature that can be found in the website shop.
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Questions in the Category: Social Care
Vaccinations: Autumn Covid Booster 2023
Can you help me reach an informed decision about the 2023 Autumn Covid Booster vaccination?
Post-Viral Fatigue Syndrome, Myalgic Encephalomyelitis or Encephalopathy, Chronic Fatigue Syndrome, and Long Covid
Please can you define what PVFS, ME/CFS, and Long Covid mean. I am having difficulty determining if they are the same disease or different. Thank you!
The 2021 NICE Guideline ME/CFS: Regrets
I know you feel that the new NICE guideline is a major improvement on the first one. So do I. But do you have any concerns, disappointments or disagreements on the content?
Residential Care Home: Complaints
I am becoming increasing concerned about the care that a relative with ME/CFS is receiving in a private residential care home. The staff have no understanding about how to care for people with ME and try to push her to do more and more. There have been occasions where I feel that her care has been neglectful or even harmful. I have raised my concerns in meetings with the staff and management on several occasions – who fail to accept that there is a problem. What can I do?
Disability Classification
How does the government define a disability? Does the government classify ME/CFS as a disability? I ask because I assume that this could have important implications for people who are having problems with benefits, education or work.
Residential Care Home
Are there any specialist nursing homes or units offering care for people with severe ME? I seem to recall that there was once an initiative to raise funds for an ME care home but this never went through due to lack of funds. I wonder if such a venture could be initiated again?
Caring: Severe ME/CFS
I’m becoming increasingly concerned about the situation that my sister and her husband find themselves in. They are both in their mid-sixties and both have non-ME/CFS health problems. They are also looking after their son – who is in his mid-thirties and has had ME/CFS for well over 10 years – with no other practical or financial help. Their son’s state of health has steadily declined in the past year. He no longer works, is largely housebound and is dependent on his elderly parents for most of his care. Like so many other people with severe ME/CFS, he has lost most of his friends and has very few visitors. My main concern is that his parents are finding it increasingly difficult to cope. The GP doesn’t know what to do and I sense that only some form of crisis will make things happen. Do you have any suggestions or do they just have to carry on till the point where they can no longer cope?
Dr Charles Shepherd
Dr Shepherd has been Trustee and Hon. Medical Adviser to the ME Association for more than 40 years. He is integral to the charity's activities and provides information and support based on his professional knowledge, personal experience as a doctor with ME/CFS, and the understanding gained from helping many thousands of people with the condition. He was a member of the comittee responsible for the 2021 NICE Clinical Guideline and is a recognised expert on ME/CFS in the UK. His knowledge extends to Post-Viral Fatigue Syndromes (PVFS), Myalgic Encephalopathy/Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), and Post-Acute Sequelae of SARS-CoV-2 infection (PASC) or Long Covid.
If you have questions about ME/CFS or Long Covid, you can:
- Review the free information in the What is ME/CFS? section of the website, and the free Covid-19 and Long Covid information in the website shop.
- Review the largest range of literature covering all aspects of living with ME/CFS. Download detailed information about symptoms, diagnosis, management, co-mordities, employment, education, related health conditions, The 2021 NICE Clinical Guideline, welfare benefits etc.
- Join the ME Association as a member and you'll receive the highly-rated ME Essential magazine, and you can ask questions of the charity’s expert advisers including Dr Shepherd.
- Contact us via the ME Connect Telephone Helpline (open 365 days a year) and speak to one of the national team of fully-trained volunteers who waiting to provide information and support.
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Medical Matters is based on the popular ‘Ask the Doctor‘ series featured in the highly-regarded member’s magazine, ME Essential, and in the healthcare professional magazine, ME Medical. Both are produced by the ME Association and published as hard-copy magazines every 3 months and sent to members and healthcare professionals by post to home or business addresses.
If you are an HCP you can sign-up here to receive ME Medical magazine (people with ME/CFS can also nominate their HCP by completing the sign-up form).
