Medical Matters > Residential Care Home

ME Essential Spring 2019

Question

Are there any specialist nursing homes or units offering care for people with severe ME? I seem to recall that there was once an initiative to raise funds for an ME care home but this never went through due to lack of funds. I wonder if such a venture could be initiated again?

Answer

Unfortunately, we are not aware of any specialist nursing homes or hospital units offering specialist care for people with severe ME/CFS. And the two hospital-based units that we did recommend – Harold Wood Hospital in Essex and Burrswood Hospital in Kent – no longer have an in-patient facility for people with ME/CFS.

The ME/CFS Specialist Service in Leeds has some in-patient beds but we receive very mixed feedback on this service – so I would recommend contacting people who have been there before pursuing this option. As you say, the initiative to set up a care home for people with ME/CFS failed – partially due to lack of funds.

Raising sufficient money to purchase or rent a suitable property and then run such a service would be a major undertaking and is not something that the ME Association could take on at the moment.

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MEDICAL DISCLAIMER

Medical Matters is for information purposes only. The answers provided by Dr Shepherd and the ME Association’s other expert advisers should not be construed as medical advice. We recommend that any information you deem relevant is discussed with your GP as soon as possible. It is important to obtain advice from a GP who is in charge of your clinical care, who knows you well, and who can consider other likely causes for symptoms. Seek personalised medical advice whenever a new symptom arises, or an existing symptom worsens. Don't assume that new or worsened symptoms are a result of having ME/CFS.

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