News | The ME Association

What is hypopituitarism and could it be an alternate explanation for ME/CFS?

By Joanna Lane with comment from Dr Charles Shepherd  I don’t have ME, but I have something important to say that I hope may help people who have.  Twelve years ago, our 31-year-old son Christopher killed himself. We were devastated and desperate to find reasons. We wondered about the serious head injury he’d had when he was seven and we found that head injury survivors are between […]

Postural Orthostatic Tachycardia Syndrome (PoTS) in Long Covid & ME/CFS

New position statement from the American Autonomic Society on PoTS and Long Covid Abstract While the acute impacts of COVID-19 were the initial focus of concern, it is becoming clear that in the wake of COVID-19, many patients are developing chronic symptoms that have been called Long-COVID. Some of the symptoms and signs include those […]

Long Covid: an unfolding story with Professor Brian Cox | The Royal Society

With vaccination programmes underway across the globe, attention is turning to the longer-term impact of COVID-19 and in particular the condition termed ‘long Covid’. Very little is known about the condition at the moment, despite some studies estimating that 1 in 20 are affected. Large-scale research projects and population studies are now looking at the […]

Margaret Mar Retires as Chair of Forward-ME

Forward-ME is undergoing a reorganisation and considering how it would best serve the patient community in the future. After many years of dedicated service, the Countess of Mar is stepping down and will be replaced by Andrew Morris as Chair (see biography, statement and minutes below) with immediate effect. Forward-ME will be led by Andrew […]

New Guideline from NICE on Chronic Pain

Russell Fleming, Content Manager, ME Association Some people with ME/CFS have expressed concern about the new chronic pain guideline from NICE. But the recommendations contained in this guideline e.g., use of exercise and therapy instead of analgesic medications, are not aimed at people with ME/CFS.  The new draft of the NICE guideline for ME/CFS (due […]

APPG on ME: Annual General Meeting and the impact of COVID-19 on people with ME/CFS

Dr Charles Shepherd, Hon. Medical Adviser, ME Association The Annual General Meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME) will take place on Monday 19 April between 11:00 – 12:00.  In addition to AGM business, this meeting will focus on the impact of the COVID-19 pandemic on the ME community. Points of discussion will include the clinical and pathological overlaps between […]

Dr Shepherd appearance on BBC 5 Live

On March 30th 2021 Radio 5 ran a segment on Long COVID featuring stories from people with the condition, Professor Helen Stokes-Lampard and Dr Shepherd. The interview to highlighted similarities and differences between Long COVID and ME/CFS. The full transcript is shown below and you can listen to the broadcast from the link below. Full Transcript  […]

NICE announce new publication date for the ME/CFS clinical guideline

Russell Fleming, Content Manager, ME Association  Dear Stakeholder,  Because of the large number of comments received during consultation on the ME/CFS guideline, and the additional work needed to respond to them fully, the publication date has changed. The guideline will now publish on 18th August 2021.   29 March 2021  The ME Association was expecting NICE (The National Institute […]

MEA Responds to BBC Radio Scotland Recommendation of GET for Long Covid & ME/CFS

On the 25 March, Jackie Brambles was standing in for Kay Adams on the BBC Radio Scotland Mornings show and held a phone-in with Dr Punam Krishnan around the issues of Long Covid.   The show was in general very helpful. It reviewed, for example, the recent Long Covid study from the University of Leicester last week which concluded that seven in ten patients hospitalised with COVID-19 were not […]

BBC NEWS: Middle-aged women ‘worst affected by long Covid’, studies find

An article has appeared on the BBC website with research suggesting middle-aged women experience the most severe, long-lasting symptoms after being treated in hospital for Covid-19. This highlights some similarities with ME/CFS along with some differences. Some quotes are shown below and the full article can be seen here. The PHOSP-Covid study also found that […]

Long Covid & ME/CFS: UCB Radio Interview with Dr Shepherd

The full transcript is shown below 00:00:00 Vicky Gibbens   Here on UCB1. It is talking point and there’s more people continue to recover from coronavirus. Many is still reporting this idea of Long Covid, ongoing symptoms that they just can’t quite shake off for many weeks. However, at the same time, we’ve got some charities very concerned, as you know, the NHS seeks […]

Why must we fight to get essential Covid vaccine protection?

Each condition has different symptoms and are very debilitating to live with. I have regular therapy to help me cope with these challenges.   I’ve suffered many different illnesses over the years including Campylobacter, recurring acute Tonsillitis, Shigella, Neuralgia, Paroxysmal Hemicrania, food intolerances, severe pre-cancerous cells, post-viral optic neuritis, burst cysts, and many more.   I’ve had 7 surgeries for […]

Pharma Tech : Could chronic fatigue syndrome be taken seriously at last?

‘Long Covid’ has become shorthand for a wide range of post-viral symptoms experienced by some patients following a Covid-19 infection. Cases of chronic fatigue after acute respiratory illness are far from unprecedented, but the scale at which they are now occurring is unprecedented. Advocates for patients with similar illnesses are now hoping that the attention […]

The Telegraph: Long Covid symptoms ease after vaccine, say sufferers

Jennifer Rigby and Sarah Newey, The Telegraph Extracts The coronavirus vaccine may alleviate the symptoms of people suffering from long Covid, according to patient groups and scientists studying the condition.    Around one in 10 people who test positive for Covid-19 end up with ongoing symptoms for up to 12 weeks, with a smaller number facing problems […]

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