News | The ME Association - Part 190

This is a brief summary of key issues that were discussed at the September meeting of The ME Association Board of Trustees.  The full day meeting was held in Buckingham on Tuesday 2 September 2008.  Informal discussions on some of these items also took place amongst trustees the evening before.  Subjects are not necessarily placed in the order […]

From the Bromsgrove Standard, September 5 (report from Tristan Harris) The chairman of the Worcestershire ME Support Group Ian Logan has called for more funding for research into the debilitating illness.

From the Bromsgrove Standard, September (report by Lucy Thomson) A BARNT Green woman travelled to Switzerland to end her own life using the assisted suicide method which is legal over there, an inquest heard.

A new support group for parents caring for children with ME has been formed in Berkshire.

From the Edinburgh Evening News, September 2 (Report by Adam Morris) IT came as no surprise that a leaked health service report revealed that ME is a condition that has been neglected for years and the treatment of it is in radical need of a shake-up.

We’ve had a request from a national network TV news show who want to talk/film people who have had experiences – good and bad – with home testing kits, particularly for diabetes, cholesterol and liver function tests. If you know of anyone prepared to contribute to the item, please give full contact details, using this […]

Our ‘How do you cope?’ survey is now closed. A total of 2,400 people completed the survey on online while paper copies of the survey are now being loaded on to the system.

Chillow, the personal cooling pad that can help soothe the intense itching of eczema, is offering a special ‘buy one, get one half price’ offer on all Chillow personal cooling pads bought during National Eczema Week (13-21 September 2008). [MEA note: This product can also help people with ME/CFS who suffer regular night sweats.]

BBC Midlands Today, August 29 This news item includes an interview with Ian Logan, chairman, Worcestershire ME Support Group. Brief mention of tissue being taken for research at the end.

Jacqui and Carl Alban bought an old cotton mill in Brittany, north west France, and then spent a small fortune converting it into six luxury apartments for disabled holidaymakers. The couple, who created British-owned business "I Need a Holiday Too!",  then discovered another amazing little secret – the advertising pages on this website!

From the Belfast Telegraph letters page, August 26 We write referring to the Belfast Telegraph article (August 12) on a mother coping with her 15- year-old son David, who suffers from ME.

 From The Guardian, 18 August 2008 After granting her partner Paul’s last wish to die in peace, Jill Anderson was shocked to find herself in court being blamed for his death. Full story

BBC Radio 4 You and Yours today interviewed Anne McGuire, Minister for Disabled people, and put a number of listeners’ questions to her. ME/CFS and incapacity benefit came up in the second half of the 13-minute discussion. Listen here

From the Edinburgh Evening News, August 16 A support group for people with chronic and debilitating fatigue has accused NHS Lothian of "burying" a report that criticises the way sufferers are cared for within the health service.

A Canadian website has rediscovered "Claire’s Story" –  a film lasting almost eight minutes which was first broadcast as part of the "Inside Out" series by BBC East of England some years ago. The film was made by the BBC after The ME Association’s publicity manager put them in touch with Jane Colby of the […]

Instead of their traditional format of serving up a main speaker (or two) for their annual conference, this year Sheffield ME Group will be holding a series of four workshops at the event on Saturday, October 18.

Since the page was launched on 26 July last year, 12,000 people have visited our page dedicated to providing up-to-date information on NHS specialist services for people with ME throughout England.

ME sufferer David Christie (15) has to spend 19 hours a day in bed. His mum, Antoinette, talks to Gráinne MCCarry of the Belfast Telegraph.

From the Aberdeen Press and Journal, 11 August 2008 MORE than 20 hardy souls completed the 32km trek through the Lairig Ghru to increase awareness of ME, the chronic fatigue syndrome or myalgic encephalopathy.

One of Northern Ireland’s most prominent ME fundraisers, Antoinette Christie, and Horace Reid, from the Northern Ireland ME Association, appeared on a late night show on Downtown Radio on August 6 – with MEA medical adviser Dr Charles Shepherd and Dr Derek Enlander, from New York, joining the discussion.