News | The ME Association - Part 189

Dr Charles Shepherd to speak at Italian ME/CFS Congress

ME Association medical adviser Dr Charles Shepherd is to speak at an international conference on ME/CFS in Italy on Friday. Another British participant will be the epidemiologist, Dr Derek Pheby, who heads up the UK National Research Observatory on ME/CFS. The conference has been organised by University of Pavia immunologist Dr Lorenzo Lorusso. Details of programme […]

Your MP, Welfare Reform and the APPG on M.E.

As you may know from the Action for ME and MEA websites, James Purnell MP, Secretary of State for Work and Pensions, has agreed to address the next APPG on M.E., about the Welfare Reform Green Paper, ‘No one written off: reforming welfare to reward responsibility.’

Unofficial wesite for the NICE Guideline Judicial Review

Experiences from people with ME/CFS who have been offered Cognitive Behaviour Therapy and/or Graded Exercise Therapy since the NICE Guideline on ME/CFS was published in August 2007 are wanted by a new website launched today to support the the Judicial Review – which is expected to take place over three days in October or November. 

DWP Minister to attend next APPG on ME

The Rt Hon James Purnell MP, Secretary of State for Work and Pensions, has agreed to address the next APPG on M.E., about the Welfare Reform Green Paper, No one written off: reforming welfare to reward responsibility.

A Welsh winner draws second prize in the MEA Weather Lottery!

Congratulations to Ms M Mitchell from Wales, who won the second prize of £200 in The ME Association’s ‘Weather Lottery’ yesterday. The top prize in the lottery is £10,000 – and the draw is held four days a week from Monday to Thursday inclusive. For details about how to enter, please click here.

Dissolution of Rainbow ME Support Group (Exeter and East Devon)

The Rainbow ME Support Group covering Exeter and East Devon has placed an announcement on its website saying that it is in the process of being dissolved due to lack of support for its activities. We have therefore removed  the group’s details from this site’s database of local support groups. 

‘ME sufferers rely on alternative medicines’

From Press Association Newswire, September 8 More than a third of patients with long-term fatigue conditions like Myalgic Encephalomyelitis (ME) believe complementary and alternative medicines (CAMs) are more effective than traditional medicine in treating their illness, research launched at the British Pharmaceutical Conference (BPC) in Manchester reveals.

‘Reinventing the wheel to help disabled’

Health reporter Jane Elliott has written an interesting story on the BBC News website today about the creation of a new prototype wheelchair – with wheels that fold in on themselves, making it easier to transport the wheelchair when it’s not in use.

No more Rotherham CFS/ME Group

We have just heard that Rotherham CFS/ME Group was dissolved at a meeting called for the purpose last night (Friday, 5 September). This information has been supplied to various ME message boards by the ex-secretary, Mrs Irene Thorpe. Details of the group have now been removed from this site’s database of local groups.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.