Summary of APPG on ME meeting held on Wednesday 2nd July 2008

MAY BE REPOSTED INFORMATION FROM THE ME ASSOCIATION This is a summary of key points to emerge from a business meeting and the AGM of the ME All Party Parliamentary Group (APPG).  The meeting was held in Committee Room 20 at the House of Commons on Wednesday 2 July 2008 from 1pm to 3pm. The minutes […]

‘Norwich ME sufferer wins court ruling’ + radio link

At the foot of this story is a link to an mp3 download of items broadcast this week on BBC Radio Norfolk. From the Eastern Daily Press, 19 June 2008. An ME sufferer from Norfolk has won a significant legal victory after a leading judge declared it “in the public interest” for the High Court […]

Vince Cable, Lib Dem deputy leader, asks about ME biomedical research

Vince Cable MP, deputy leader of the Liberal Democrat Party, tabled a question about biomedical research into ME and funding of clinical co-ordinating centres in the House of Commons. A written answer was provided yesterday by Ian Pearson MP, minister of state for science and innovation at the Department for Innovation, Universities and Skills. The […]

Tragic death of Mr Kevin Tripp

It is with great sadness that we report the death of Mr Kevin Tripp, who died last night after an incident the night before in the check-out queue at Sainsbury’s store in Merton, south west London.

A million and a half pages read here

Over a million and a half pages on the website had been read by early morning today – helping to maintain this site’s Google ranking as the most visited  site on the web for information about ME

Melatonin (as Circadin) becomes available on an NHS prescription | 5 June 2008

Although the role of melatonin in the management of sleep disturbance in ME/CFS remains uncertain, some people do use this product and claim that it is of benefit.  But, with the Department of Health expressing concerns over safety, most doctors have been unwilling to prescribe melatonin and instead leave patients to search out their own source of supply.


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