Healthcare 4 ME
News Bulletins
Latest blogs, news and updates on our Healthcare 4 ME
“People with ME/CFS need the same access to healthcare and support as other NHS patients that is commensurate with the severity of their illness.”
NICE Guidelines 2021
HASC Working Group Meeting Update
The HASC team provided the working group with an update on recent progress with the…
HASC Team Represents Patient Views at ICB Long Covid Planning Meeting
At a recent planning meeting for Long Covid services hosted by an Integrated Care Board…
British Association of Clinicians in ME/CFS (BACME): ME/CFS Tube Feeding Survey – Share Your Experience
A small number of patients with ME/CFS can experience significant eating difficulties and in some…
PILOT PROJECT: PATIENT AND CARER ENGAGEMENT WORK
On 21st July 2025, the Health and Social Care (HASC) team met with a regional…
Health and Social Care: Working Group amplifies the patient voice.
We have held our fifth working group, which focused on key priorities for local ME/CFS…
The Buckinghamshire, Oxfordshire, and Berkshire survey is now closed.
Thank you to everyone who participated in the BOB survey for ME/CFS. We received responses…
Share your experience of ME/CFS or Long Covid health and social care
Do you have any experience of health and social care in Buckinghamshire, West Berkshire, or Oxfordshire? We would like to hear your feedback whether good or bad as this helps to make informed decisions when recommending services.
This is ME
“Thank you every so much you have been absolutely brilliant. I wish I knew sooner where to turn. I do appreciate what you doing and i must say you helped me more than anyone in the past year. Thank so much”.
“Thank you again for your support and the information provided, knowing we have a network of such attentive and intellectual individuals really does give us the encouragement we need to work through this.”
“Thank you again for your support earlier in the year in navigating the system too, I really appreciated it.”
I am so pleased you are taking affirmative action on my behalf Karren and others like me. Honestly, it's so reassuring to have an advocate who speaks with knowledge and leaves the emotion aside which is inevitably what patients and carers add in”.
“I just wanted to update you on my situation and send you heartfelt gratitude for all your help. Thank you so much. Without your input, I'm sure it would have been a much longer process…”
“Thank you so much for producing the hospital care pack. For those of us who have struggled to convey our needs without seeming “precious” it is extremely helpful.”
Archive library
Previously published posts
HASC Working Group Meeting Update
The HASC team provided the working group with an update on recent progress with the…
HASC Team Represents Patient Views at ICB Long Covid Planning Meeting
At a recent planning meeting for Long Covid services hosted by an Integrated Care Board…
British Association of Clinicians in ME/CFS (BACME): ME/CFS Tube Feeding Survey – Share Your Experience
A small number of patients with ME/CFS can experience significant eating difficulties and in some…
PILOT PROJECT: PATIENT AND CARER ENGAGEMENT WORK
On 21st July 2025, the Health and Social Care (HASC) team met with a regional…
Health and Social Care: Working Group amplifies the patient voice.
We have held our fifth working group, which focused on key priorities for local ME/CFS…
The Buckinghamshire, Oxfordshire, and Berkshire survey is now closed.
Thank you to everyone who participated in the BOB survey for ME/CFS. We received responses…
HASC Team Presentation to CHC Community Nurses – Devon and Torbay NHS Trust
This week, members of the HASC team were pleased to deliver an informative presentation to…
Join us in the first of our webinar series: Integrating ME/CFS and Long Covid specialist services.
The two-hour webinar will take place on Wednesday, 02 July, at 1 p.m. NHS clinicians…
Bridging the Gap: How Social Prescribers can make a real difference for ME/CFS Patients.
Have you heard of social prescribers? In a recent meeting with a social prescriber working…
ME Association and Elaros host the first integrating ME/CFS and long Covid specialist services webinar.
The ME Association is pleased to announce its first integrated care webinar. The Health and…
Integrating Long Covid and ME/CFS services could benefit patients and boost productivity
Health Innovation Oxford (HIO) and Thames Valley recently published a report supporting merging ME/CFS and…
HASC meeting with CHC-Funded Community Nursing Team in Devon
Last week, the HASC team had the opportunity to meet with the Continuing Healthcare (CHC)-funded…
Share your experience of using ME/CFS and Long Covid services in Greater Manchester (GM)
Your views will help NHS GM understand what people with ME/CFS and Long Covid think…
Improving Hospital Care for People with Severe ME: Focus on Nutrition and Hydration
The Health and Social Care (HASC) team at the ME Association is committed to working…
BOB ICB PILOT PROJECT SURVEY IS LIVE!
Calling all residents of Buckinghamshire, Oxfordshire, and West Berkshire (BOB)!Do you or someone you care…
Share your ME/CFS experience to help shape future services
Your reviews can help others make informed decisions about their healthcare. Leaving a review is…
Help Shape the Future of ME/CFS/Long Covid Care in Greater Manchester!
This is your chance to make your voice heard! NHS Greater Manchester is designing a…
Lunch and Learn session with Dr Katrina Pears
Dr Katrina Pears, Research Coordinator, joined Tees, Esk, and Wear Valleys NHS Foundation Trust to…
An Update on BOB ICB Working Group Meeting 3
On 26th March, the Health and Social Care team met with the Buckinghamshire, Oxfordshire, and…
Opportunity to Influence ME/CFS and LC Care within BOB ICB
We await feedback from members of a working group within Buckinghamshire, Oxfordshire, and West Berkshire…
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Written by Dr Charles Shepherd, other advisers, and topic experts