News | The ME Association- Part 191

Melatonin (as Circadin) becomes available on an NHS prescription | 5 June 2008

Although the role of melatonin in the management of sleep disturbance in ME/CFS remains uncertain, some people do use this product and claim that it is of benefit.  But, with the Department of Health expressing concerns over safety, most doctors have been unwilling to prescribe melatonin and instead leave patients to search out their own source of supply.

In the House of Lords yesterday…

Representatives from BRAME (Christine and Tanya Harrison) and The ME Association were present ‘Below the Bar’ in the House of Lords on Monday 2 June to listen to a series of questions to Health Minister, Lord Darzi, on the subject of ME/CFS.   There was a very good attendance, including some well known parliamentarians, from all sides […]

‘Messages of hope to ill kids’

From ‘The Sun’, 3 June 2008; story by Dulcie Pearce BRAVE Vikki George has been bed-bound with ME for the past six years. But instead of wallowing in self-pity, the pretty 23-year-old has devoted her life to writing to other sick youngsters to offer them hope and support.

Triumph Tiger Cub motorcycle tour of Scotland

Jacqui Watson, who has just restored a 1962 Triumph Tiger Cub motorcycle which has been off-road for 30 years, is spending the summer riding it round the 33 counties of Scotland to raise funds for The ME Association and the National Association for Bikers with Disabilities.

Help with purchase of powered wheelchairs and scooters

In the search for a powered wheelchair that he couldn’t afford to buy himself, a 43-year-old man with ME and his social worker turned to The Mobility Trust, a national charity providing powered wheelchairs and scooters for severely disabled chldren and adults who cannot obtain them any other way.

Adam Findlay and his MedicAlert sport band

Adam Findlay, aged 16, from the Weston-super-Mare was your average teenager, playing for his local and school rugby team and socialising with friends until, at the tender age of 13 he was struck down with ME. Suddenly his life changed.

Co-proxamol in the news again?

The ME Association has just been approached by a major TV news channel which is collecting stories about people who regret the day when the pain-killing drug, co-proxamol, was taken off prescription – except for doctors using it on a very restricted ‘named patient’ basis.

A star is born – in Malta!

  Photo: Brian Grech From silent sufferer to eloquent and beautiful advocate for ME – that’s the astonishing story of sixth-former Denise Vella, who lives in Malta.

Letters page, The Sun, May 12

Dear Sir It was a bad day for children when ME got called by the barmy name ‘Chronic fatigue syndrome’. Some of our children can’t speak or swallow and have to be tube fed. That is so not ‘fatigue’. That is devastation. Jane Colby Executive Director The Young ME Sufferers Trust

Look in on our ME-relevant advertisers

Our advertisers include a Welsh company that makes chemical-free mattresses, a holiday and retreats centre in Gascony, an ammonia-free hairdresser in Keighley (West Yorkshire) and an electric bike company helping people enjoy their pedal-power. They’re all relevant to people with ME/CFS and their carers. Click here to visit them  

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