Although the role of melatonin in the management of sleep disturbance in ME/CFS remains uncertain, some people do use this product and claim that it is of benefit. But, with the Department of Health expressing concerns over safety, most doctors have been unwilling to prescribe melatonin and instead leave patients to search out their own source of supply.
News | The ME Association- Part 191
Representatives from BRAME (Christine and Tanya Harrison) and The ME Association were present ‘Below the Bar’ in the House of Lords on Monday 2 June to listen to a series of questions to Health Minister, Lord Darzi, on the subject of ME/CFS. There was a very good attendance, including some well known parliamentarians, from all sides […]
From ‘The Sun’, 3 June 2008; story by Dulcie Pearce BRAVE Vikki George has been bed-bound with ME for the past six years. But instead of wallowing in self-pity, the pretty 23-year-old has devoted her life to writing to other sick youngsters to offer them hope and support.
Jacqui Watson, who has just restored a 1962 Triumph Tiger Cub motorcycle which has been off-road for 30 years, is spending the summer riding it round the 33 counties of Scotland to raise funds for The ME Association and the National Association for Bikers with Disabilities.
In the search for a powered wheelchair that he couldn’t afford to buy himself, a 43-year-old man with ME and his social worker turned to The Mobility Trust, a national charity providing powered wheelchairs and scooters for severely disabled chldren and adults who cannot obtain them any other way.
Back in April The MEA wrote to the Royal College of General Practitioners (RCGP) to ask them to change their decision to classify CFS as a mental health disorder in an important training document for GPs: Care of People with Mental Health Problems. We have now received a very disappointing reply.
Adam Findlay, aged 16, from the Weston-super-Mare was your average teenager, playing for his local and school rugby team and socialising with friends until, at the tender age of 13 he was struck down with ME. Suddenly his life changed.
The ME Association has just been approached by a major TV news channel which is collecting stories about people who regret the day when the pain-killing drug, co-proxamol, was taken off prescription – except for doctors using it on a very restricted ‘named patient’ basis.
Photo: Brian Grech From silent sufferer to eloquent and beautiful advocate for ME – that’s the astonishing story of sixth-former Denise Vella, who lives in Malta.
An ME Question Time – an opportunity to discuss what’s happening in the ME world today – will be held in Colchester, Essex, on Saturday, October 11.
Eric Smart, who is cycling from Aberdeen to Australia for The ME Association popped into the village of Weston, near Spalding, South Lincs, on Friday, May 16 – 561 miles into his epic 15,000-mile journey. He plans to reach Aberdeen in South Australia some time in 2010.
The ME Association and The Young ME Sufferers Trust today jointly reject this week’s call for the number of graded exercise therapists to be increased. This is because of our serious concern for the safety of patients given this controversial approach to management.
To mark ME Awareness Month, The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME.
The ME Association rejects calls being made this week for the number of graded exercise therapists to be increased because we have concerns about both the effectiveness and safety of this controversial approach to management.
Dear Sir It was a bad day for children when ME got called by the barmy name ‘Chronic fatigue syndrome’. Some of our children can’t speak or swallow and have to be tube fed. That is so not ‘fatigue’. That is devastation. Jane Colby Executive Director The Young ME Sufferers Trust
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From The Economist print section, 8 May 2008 ME is a puzzling illness, but it appears to have a biological basis and a test for it could be developed.
Labour MP for Norwich North, Dr Ian Gibson, has been asking about the recent closure of specialist ME paediatric services in Leeds, Stevenage and London.
From The Argus, Brighton, 8 May 2008 A woman who suffered chronic fatigue syndrome was sacked from her job – but went on to win £150,000 on TV’s Who Wants To Be A Millionaire.
The IMEGA electronic news group, founded nine years ago to provide a means of contact and information between officers of local and national ME groups, was closed without warning at the weekend.