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NHS specialist services for ME/CFS/Long Covid

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Find an NHS ME/CFS Specialist Service or Long Covid Clinic Near You!

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Disclaimer: Service information is provided for general information purposes only. The H4ME team does not endorse any NHS services listed in the directory.

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The NICE Rapid Guideline on Long Covid was last updated 25 January 2024. It has not yet been completed because the evidence-base is still evolving. The Guideline on ME/CFS is more comprehensive and is something that the ME Association helped to create and strongly recommends. We hope the Guideline on Long Covid will be just as helpful in due course.

Specialist Services Review Results in December 2025:

  • Specialist Service Ratings showing an average of 2.2 out of 5, and 1 star reviews is at 51%
  • Pie chart asking if a GP diagnosed ME/CFS before referral - Results show 35% said yes and 52% said no, the rest were unsure
  • Chart asking "Were you satisfied the service adequately addressed your care needs?" shows 59% were very dissatisfied
  • Chart showing recommended treatments by percentage - Pacing is the most recommended, then Other, both at 28%, then Multiple Services at 23%, Mindfulness and Symptom Management was 13%, then with much lower frequency recommendations of CBT, Physiotherapy and Peer support at 4% and 3%
  • Chart asking "How satisfied were you with the treatment plan improving your overall health?" shows that 61% were very dissatisfied
  • Chart asking "How long did you have to wait to be seen by the specialist service, after a GP referral?" - shows 30% were 3 months, 32% 6 months, 9% up to 12 months, and 30% over 12 months
  • Charts showing the demographics of reviewers - predominantly female, and age of 50-59, followed by age 40-49
  • Charts showing the demographics of reviewers looking at ethnicity - White British is predominant at 79%, white other is 9%, all other mixed backgrounds is 8% and other ethnic groups at 3%

Please note

While patients can contact any of the existing NHS specialist services or clinics for information, referrals for assessment, diagnosis, coping support, and management must be made by a GP. 

If there isn't an NHS specialist service or clinic in a particular area, a patient can be referred to one of their choosing (under the NHS Constitution), and would need to speak to a GP in the first instance.

Consider

  • The impact of travelling to a service and taking part in regular management sessions on health.
  • Once diagnosed, many specialist services and clinics will offer up to 6 sessions in which a patient can learn how best to cope with and manage their ME/CFS or Long Covid.
  • Not all services or clinics can currently provide remote access, so please check what will be involved and how accessible the appointments are before making any commitments or travel plans. 

If you find any of the information contained in this listing to be inaccurate, then please let us know:

health@meassociation.org.uk

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