Manx Radio turn up the volume for a specialist ME/CFS service on the Island
Manx Radio supported the campaign for a local ME/CFS service with this easy-to-listen-to podcast.
Month: November 2020
We demand changes to ‘Observer’ article
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
The Big Give Christmas Challenge!
This is the final day of our Christmas Appeal, The matched funds have been used up. But donations to our Medical Education Campaign are still welcome.
Cards and paintings – please push the boat out a bit for the ME Association
Please make the MEA’s day! Buy these cards or a painting for Christmas.
Evan gets noticed by the media
In the news herself! Our magazine columnist Ev Francis writes for the Daily Telegraph and is filmed for a short BBC documentary.
Covid-19 Vaccine Developments & ME/CFS
There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…
A new video on pacing and activity management – at such a critical time for us all
This is a film for all seasons about pacing and activity management in people with ME – and in a certain type of Long Covid.
The ME Association ME/CFS Research Round-up
This week 6 new studies about ME/CFS and Fibromyalgia were published including a small study from Canada that made the news…
ME Essential Magazine & the Christmas Supplement will be with Members very soon!
ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association Covid-19 & ME/CFS Free Range of Leaflets
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
From the West Country – A generous Christmas offer to help the ME Association
Emma Roberts has a son, George, who has M.E. She has created special Christmas card designs to help raise money for the ME Association.
The ME Association ME/CFS Research Round-up
Eight new studies have been published and we highlight several of them including one about epigenetics and ME/CFS,
Situations Vacant: We want a Webmaster to join the ME Association team!
The ME Association is recruiting for a new Webmaster – someone who can look after the website and website shop and grow its online presence…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association ME/CFS Research Round-up
We report on 5 new research studies and highlight the discovery of bioenergetic defects in the skeletal muscle of people with ME/CFS.
Situations Vacant: We are looking for a social media specialist to join the ME Association team!
We seek a specialist to manage the charity’s growing social media. It is a full-time position that enables you to work from home…