November 2017

Hilary is a born empathiser – always putting herself in your situation, thinking what you might need, and acting to help you as best she can. Which is exactly what you need for someone who runs a helpline.

The following article appeared in The Hippocratic Post, and was written by Rebecca Wallersteiner, on 25th November, 2017. It features comment from Sarah Staples, and Dr Charles Shepherd, from the ME Association.

“Despite the headline negative finding, we believe that this trial will still provide useful insights and contribute to a better understanding of M.E., and we also have the results from the Cyclophosphamide clinical trial to look forward to. We are very pleased that this knowledgeable, and valued, research team will continue with their work, trying to find answers to the M.E. puzzle.”

If you you’re looking for that unique festive gift for someone you hold dear, do take a look at the Marketplace4ME,  and contact the makers direct. If they don’t happen to provide contact details, then contact Helen, and she can put you in touch with them.

Forward ME members met with Dr Max Davie from the Royal College of Paediatricians to discuss matters relating to children and M.E. They also discussed developments at NICE and with research incl. the controversial SMILE trial.

A few months ago, we asked our Facebook community what difference having a pet in their lives made to their abilities to cope with M.E.

Anna Wood reviews some of the digital tools that have allowed her to work as an academic while being 90% housebound by M.E.

Neo’s first official public appearance for the ME Association, with be at the Santa Dash in Glasgow on 10th December. Please support his challenge.

The Royal Society hosted a two-day conference ‘understanding the neurobiology of fatigue’. One of the distinguished researchers was Professor Julia Newton from the University of Newcastle, who spoke about the role of autonomic dysfunction and ME/CFS.

Hannah Price, 23, has had ME since she was 11 years old. Like many people with ME, Hannah developed it after contracting a virus that she never truly recovered from…

Background: When the SMILE trial results were published, the ME

Over 65 days, Sophie Breese and her partner walked the Camino de Santiago from her home in France to Fisterra in North west Spain. A total of 1,376km!

  This year’s Christmas cards have flown out of the

  This was a blog written by Ruthann Richter and

Last weekend, two very special ladies donned the iconic purple ME Association, ‘It’s Real It’s Physical’, t-shirts to embark on the Leeds Abbey Dash for M.E.

  Published in the Journal Fatigue: Biomedicine, Health & Behaviour,

  This article appeared in the New Scientist on November

Quite an alarming title. But if you’ve lived with or around M.E. you will surely have felt like shouting it, or something similar, at one time or another – perhaps at the top of your voice, regardless of who could hear you, or what they might think.