2017

Belfast Newsletter: ‘We must keep believing science will catch up with ME. There is real hope’ | 22 December 2017

This is the fifth Christmas Paul will spend bedbound, away from his family, his partner Ciara and their son, Naoise.

He has borne this life changing illness with such strength and determination that all we can do is follow his lead and keep believing science will catch up with ME and that sufferers will finally get the care they deserve.

Belfast Newsletter: ‘We must keep believing science will catch up with ME. There is real hope’ | 22 December 2017 Read More »

This is the fifth Christmas Paul will spend bedbound, away from his family, his partner Ciara and their son, Naoise.

He has borne this life changing illness with such strength and determination that all we can do is follow his lead and keep believing science will catch up with ME and that sufferers will finally get the care they deserve.

Fundraising Feature: Baz Hornsby – ‘one of the ME Association’s most committed fundraising characters’ | 18 December 2017

Baz Hornsby’s flair for dreaming up new challenges, his passion for seeing them through, and his ingenuity when things don’t go quite right, are the stuff of legends.

Fundraising Feature: Baz Hornsby – ‘one of the ME Association’s most committed fundraising characters’ | 18 December 2017 Read More »

Baz Hornsby’s flair for dreaming up new challenges, his passion for seeing them through, and his ingenuity when things don’t go quite right, are the stuff of legends.

University of Gloucestershire lecturer’s film is up for an Oscar | 10 December 2017

“But what is so special about this is that it is about visibility. We set out to make a film about people who were disbelieved, rarely listened to, and often made invisible…

University of Gloucestershire lecturer’s film is up for an Oscar | 10 December 2017 Read More »

“But what is so special about this is that it is about visibility. We set out to make a film about people who were disbelieved, rarely listened to, and often made invisible…

M.E. Advocate, Shannon Tiday, named Young Hero of the Year in Plymouth Herald’s Awards Ceremony | 07 December 2017

Shannon Tiday hit the headlines back in September, following publication of the controversial SMILE trial that suggested M.E. could be treated by the Lightning Process. She took to Facebook to protest this association, and her poignant video went viral.

M.E. Advocate, Shannon Tiday, named Young Hero of the Year in Plymouth Herald’s Awards Ceremony | 07 December 2017 Read More »

Shannon Tiday hit the headlines back in September, following publication of the controversial SMILE trial that suggested M.E. could be treated by the Lightning Process. She took to Facebook to protest this association, and her poignant video went viral.

MEA Fundraising: ‘My dogs are what have held me together and kept me sane over these past years.’ | 06 December 2017

My family and friends all know how passionately I feel about supporting the ME Association. But it’s one thing to have passion and quite another to have the courage and confidence to stand up in public and be counted.

MEA Fundraising: ‘My dogs are what have held me together and kept me sane over these past years.’ | 06 December 2017 Read More »

My family and friends all know how passionately I feel about supporting the ME Association. But it’s one thing to have passion and quite another to have the courage and confidence to stand up in public and be counted.

Forward ME – Meeting with Professor Mark Baker, Director of Guidelines, NICE | 04 December 2017

Members of the Forward ME group met with Professor Mark Baker from NICE to discuss the recent decision to review and update the clinical guideline for ME/CFS. These are the minutes from that meeting, dated, 31 October 2017.

Forward ME – Meeting with Professor Mark Baker, Director of Guidelines, NICE | 04 December 2017 Read More »

Members of the Forward ME group met with Professor Mark Baker from NICE to discuss the recent decision to review and update the clinical guideline for ME/CFS. These are the minutes from that meeting, dated, 31 October 2017.

Why are we asking about migraine headaches in this month’s ME Association website survey? | 04 December 2017

Unusual headaches, including migraine, form part of ME/CFS diagnostic criteria. News last week revealed a significant breakthrough in the treatment of migraine, and we have decided to use this month’s website survey to look at migraine type headaches.

Why are we asking about migraine headaches in this month’s ME Association website survey? | 04 December 2017 Read More »

Unusual headaches, including migraine, form part of ME/CFS diagnostic criteria. News last week revealed a significant breakthrough in the treatment of migraine, and we have decided to use this month’s website survey to look at migraine type headaches.

Shopping online this Christmas? Please consider easyfundraising for the ME Association | 01 December 2017

If you haven’t already done so, please sign up for easyfundraising before you go online and order all those Christmas presents, or book that holiday. It won’t cost you anything more, but it will raise precious funds for the ME Association!

Shopping online this Christmas? Please consider easyfundraising for the ME Association | 01 December 2017 Read More »

If you haven’t already done so, please sign up for easyfundraising before you go online and order all those Christmas presents, or book that holiday. It won’t cost you anything more, but it will raise precious funds for the ME Association!

When Neo met Hilary from ME Connect – the manager of our telephone helpline | 30 November 2017

Hilary is a born empathiser – always putting herself in your situation, thinking what you might need, and acting to help you as best she can. Which is exactly what you need for someone who runs a helpline.

When Neo met Hilary from ME Connect – the manager of our telephone helpline | 30 November 2017 Read More »

Hilary is a born empathiser – always putting herself in your situation, thinking what you might need, and acting to help you as best she can. Which is exactly what you need for someone who runs a helpline.

The Hippocratic Post: Unrest – a new film about ME | 27 November 2017

The following article appeared in The Hippocratic Post, and was written by Rebecca Wallersteiner, on 25th November, 2017. It features comment from Sarah Staples, and Dr Charles Shepherd, from the ME Association.

The Hippocratic Post: Unrest – a new film about ME | 27 November 2017 Read More »

The following article appeared in The Hippocratic Post, and was written by Rebecca Wallersteiner, on 25th November, 2017. It features comment from Sarah Staples, and Dr Charles Shepherd, from the ME Association.

ME Association Statement: Negative phase III clinical trial result from Norway for Rituximab in ME/CFS | 27 November 2017

“Despite the headline negative finding, we believe that this trial will still provide useful insights and contribute to a better understanding of M.E., and we also have the results from the Cyclophosphamide clinical trial to look forward to. We are very pleased that this knowledgeable, and valued, research team will continue with their work, trying to find answers to the M.E. puzzle.”

ME Association Statement: Negative phase III clinical trial result from Norway for Rituximab in ME/CFS | 27 November 2017 Read More »

“Despite the headline negative finding, we believe that this trial will still provide useful insights and contribute to a better understanding of M.E., and we also have the results from the Cyclophosphamide clinical trial to look forward to. We are very pleased that this knowledgeable, and valued, research team will continue with their work, trying to find answers to the M.E. puzzle.”

Made for M.E.! The Marketplace 4 M.E. Team – Christmas Gift Ideas | 25 November 2017

If you you’re looking for that unique festive gift for someone you hold dear, do take a look at the Marketplace4ME,  and contact the makers direct. If they don’t happen to provide contact details, then contact Helen, and she can put you in touch with them.

Made for M.E.! The Marketplace 4 M.E. Team – Christmas Gift Ideas | 25 November 2017 Read More »

If you you’re looking for that unique festive gift for someone you hold dear, do take a look at the Marketplace4ME,  and contact the makers direct. If they don’t happen to provide contact details, then contact Helen, and she can put you in touch with them.

Forward ME – Meeting with Dr Max Davie from the Royal College of Paediatricians | 25 November 2017

Forward ME members met with Dr Max Davie from the Royal College of Paediatricians to discuss matters relating to children and M.E. They also discussed developments at NICE and with research incl. the controversial SMILE trial.

Forward ME – Meeting with Dr Max Davie from the Royal College of Paediatricians | 25 November 2017 Read More »

Forward ME members met with Dr Max Davie from the Royal College of Paediatricians to discuss matters relating to children and M.E. They also discussed developments at NICE and with research incl. the controversial SMILE trial.

Understanding the neurobiology of fatigue: Professor Julia Newton ‘Standing up for fatigue’ | 16 November 2017

The Royal Society hosted a two-day conference ‘understanding the neurobiology of fatigue’. One of the distinguished researchers was Professor Julia Newton from the University of Newcastle, who spoke about the role of autonomic dysfunction and ME/CFS.

Understanding the neurobiology of fatigue: Professor Julia Newton ‘Standing up for fatigue’ | 16 November 2017 Read More »

The Royal Society hosted a two-day conference ‘understanding the neurobiology of fatigue’. One of the distinguished researchers was Professor Julia Newton from the University of Newcastle, who spoke about the role of autonomic dysfunction and ME/CFS.

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