“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.
Focus on young people at next meeting of Westminster APPG on ME | 10am, 16 June 2020 Read More »
Virtual meeting – please email your own MP and ask that they attend this important meeting
For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
ME Association Guidance: Reducing the risk of Covid-19 and PVFS/ME/CFS | 19 May 2020 Read More »
We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.
We provide support, reliable information, a voice when needed, and funding for medical research.
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020 Read More »
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
ME Awareness: The MEA Ramsay Research Fund | 12 May 2020 Read More »
We invest in biomedical research but need your support so that we can do more to determine the cause(s) of M.E. and help develop effective treatments.
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
ME Awareness: What the research is telling us about the pathology of ME |11 May 2020 Read More »
This leaflet provides a summary of what biomedical research is telling us about M.E. It considers key symptoms, common triggers, and explains how various aspects of disease pathology could be linked to specific symptoms.
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
MEA Website Survey: How are you coping with the Covid-19 lockdown? Read More »
We’d like to know how you have been coping with the Covid-19 lockdown. Please take part in the survey and Facebook discussion.