Focus on young people at next meeting of Westminster APPG on ME | 10am, 16 June 2020

Please email your own MP and ask that they attend this important meeting.

Dr Charles Shepherd, Hon Medical Adviser, ME Association

The APPG on ME will be resuming work on their comprehensive report at a virtual meeting on Tuesday 16th June.

This meeting will cover issues relating to children and adolescents with ME/CFS – including diagnosis, medical management, education, inappropriate social services interventions.

There will be three presentations from:

There was a large attendance when Carol Monaghan MP (front row, centre) set up the new APPG in January – following the General Election in December,
  • Dr Nigel Speight – Consultant Paediatrician and Medical Adviser to The ME Association and TYMES Trust
  • Tony Crouch – Paediatric social worker and social work adviser to TYMES Trust, 25% ME Group, Hope 4 ME and Fibro NI. 
  • A parent of a child with ME

The presentations will be followed by discussion and questions from MPs.

We will be contacting MPs who have attended a previous meeting of the APPG on ME, or are known to have an interest in ME.

It will also help to increase attendance if people can contact their MPs to ask them to attend.

The meeting starts at 10am – your MP will need to contact Carol Monaghan’s office for details on how to join:

Email for Carol Monaghan MP: carol.monaghan.mp@parliament.uk

Dr Shepherd serves on the APPG for ME Secretariat.

Three prominent scientists with special interests in ME/CFS spoke at the annual meeting of the APPG just before lockdown in March – Professor Chris Ponting, chairman of the UK CFS/ME Research Collaborative (blue jumper) and, on the right, Dr Eliana Lacerda from the UK ME/CFS Biobank and Professor Julia Newton, University of Newcastle.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.