Tag: Dr Charles Shepherd

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.

The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.

The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.

Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.

Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.

Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.

Virtual meeting – please email your own MP and ask that they attend this important meeting

For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.

We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.

We provide support, reliable information, a voice when needed, and funding for medical research.

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.