The ME Association: We Support, Inform, Advocate and Invest in Biomedical Research | 19 May 2020
We provide support, reliable information, a voice when needed, and funding for medical research.
Dr Charles Shepherd
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
ME Awareness: “If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020 Read More »
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
ME Awareness: The MEA Ramsay Research Fund | 12 May 2020
ME Awareness: The MEA Ramsay Research Fund | 12 May 2020 Read More »
We invest in biomedical research but need your support so that we can do more to determine the cause(s) of M.E. and help develop effective treatments.
ME Awareness: New CPD Training Course for Medical Professionals about ME/CFS | 12 May 2020
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
ME Awareness: What the research is telling us about the pathology of ME |11 May 2020
ME Awareness: What the research is telling us about the pathology of ME |11 May 2020 Read More »
This leaflet provides a summary of what biomedical research is telling us about M.E. It considers key symptoms, common triggers, and explains how various aspects of disease pathology could be linked to specific symptoms.
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
MEA Website Survey: How are you coping with the Covid-19 lockdown?
MEA Website Survey: How are you coping with the Covid-19 lockdown? Read More »
We’d like to know how you have been coping with the Covid-19 lockdown. Please take part in the survey and Facebook discussion.
Stalwart champion of the ME community retires after distinguished parliamentary career | 01 May 2020
The Countess of Mar has decided to retire from the House of Lords, but will continue to work with Forward-ME.
ME Association Weekly Update: Coronavirus and ME/CFS – New Leaflet and Letter | 17 April 2020
We provide a weekly update on Covid-19 in a new free leaflet and a letter about vulnerability to be used when required.
We Welcome Professor Derek Pheby as a New Patron of the ME Association | 01 April 2020
We Welcome Professor Derek Pheby as a New Patron of the ME Association | 01 April 2020 Read More »
Derek Pheby has had a distinguished career and has a keen interest in M.E. and in research.
ME Association Full Guidance: Coronavirus and ME/CFS by Dr Charles Shepherd | 31 March 2020
Dr Shepherd provides another update and comprehensive guidance for people with ME/CFS.
The ME Association: Ten Key Points on Employment, ME/CFS and the Coronavirus | 27 March 2020
We provide an update on the measures in place to help people who are in employment during the coronavirus pandemic.
The Cambridge Lectures: Demystifying ME/CFS | 04 March 2020
The Cambridge Lectures: Demystifying ME/CFS | 04 March 2020 Read More »
Drs. Shepherd and Muirhead with Ms. Kingdon from the ME Biobank are presenting lectures on 19th March at Addenbrooke’s Hospital.
Three ME patients reveal their daily struggle with the crippling condition | 02 March 2020
MailOnline: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist.
Statement: What’s next for the All-Party Parliamentary Group on ME? | 19 February 2020
Statement: What’s next for the All-Party Parliamentary Group on ME? | 19 February 2020 Read More »
We review what happened at the first meeting and list the MPs that attended. Biomedical research is on the agenda for the next APPG meeting in March.
Stigma and Marginalisation: Research opportunity for people with ME living in the UK | 17 February 2020
Jo Hunt from the University of Derby is looking to recruit people with M.E. for her research study.