Caring for a person with ME/CFS

£1.00

In this 20-page booklet, we consider the wellbeing of carers as well as the people they care for, what caring might actually involve, illness management, the kind of help that might be necessary, stories from carers and comments from people who receive care.

Caring is vitally important but it can be quite isolating and if you are new to caring it can be hard knowing what to do. We understand the difficulties of being a carer and are here to help.

ME/CFS is one of the hardest conditions to manage and can represent a real challenge to the people who have it and to those who care for them. Symptoms and severity can be unpredictable and for a loved one it can be very difficult to watch a previously active and engaged partner or family member suddenly be unable to cope on their own.

In this comprehensive booklet, we consider the wellbeing of carers as well as the people they care for, what caring might actually involve, illness management, the kind of help that might be necessary, and we feature stories from carers and helpful comments from those in the community who receive help from carers.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.

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