Social Care & Social Services

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In this leaflet, we explain how your Local Authority can provide finance to help you cope with ME/CFS and how they can also provide social care assistance. You get to choose how to spend a personal budget, but first you will need to obtain a social care needs assessment.

ME/CFS is a serious and sometimes devastating illness. It can affect every part of a person's life. Even the simplest of tasks like going to the bathroom or climbing the stairs can prove very difficult or impossible. Help to cope with everyday living may be available from your local authority social services department.

Significant changes to social care provision were implemented in England in April 2015, and this leaflet explains how the new system operates and what you need to do in order to arrange for a social care needs assessment. For example, it is now possible for the local authority social services department to offer cash, rather than services. This system is called ‘Direct Payments’ and people who receive this money must use it to arrange services for themselves to meet their care needs.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note: Once you have made payment and checked out from the website shop, you will receive a confirmation email containing direct download links to your leaflets. Click the links and you can read your leaflets on-screen and save to your computer, phone, or other device. But you will need access to a printer if you wish them printed.

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