“We’ve got this tsunami of people that were previously strong adults who are just not getting better and general practice is just not equipped for these people”. – Dr Shepherd
“I was infected with coronavirus in March, six months on I’m still unwell,” Read More »
Charlie Russell, 27, is one of an estimated 600,000 people with post-Covid illness, a condition that may give an insight into ME – with Dr Charles Shepherd.
Potential research into Long-Covid and ME/CFS at the ME Biobank Read More »
The ME Biobank team with Dr William Weir are hoping to conduct research into Post-Covid and ME/CFS. Please register your interest in taking part.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS Read More »
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise Read More »
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes Read More »
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
Meet The Scientist: Professor Chris Ponting – DecodeME Read More »
Chris Ponting talks about the DecodeME study that seeks to understand the causes of M.E. and could help advance the discovery of effective treatments.
Jessica Taylor-Bearman wins The People’s Book Prize! Read More »
‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ Read More »
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
MRC: Largest Genetic Study into ME is Launched! Read More »
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
