The DecodeME Genetics Study: Letters to The Times
The DecodeME Genetics Study: Letters to The Times Read More »
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
News
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Patients, Scientists, and Advocates Celebrate £3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA study!
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership Read More »
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness | 19 June 2020
“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”
Physios for M.E. throw down a challenge to their profession in their first podcast | 12 June 2020
Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.
These people have been sick with coronavirus for more than 60 days – doctors don’t know why | Washington Post | 11 June 2020
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
Scientists call for more European research into ME/CFS | European ME Coalition statement | 10 June 2020
14,000 people have signed this petition to the European Parliament demanding ME/CFS research.
Physiotherapists taught three little words for the care of people with Post-Viral Fatigue Syndrome | 3 June 2020
Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.
“Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
“If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020 Read More »
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”
ME Association Research: New study to measure physiological changes in daily activity in people with ME | 12 May 2020
This exciting study will examine the physiology of M.E. and is led by researchers from Leicester, Oxford and Manchester Universities and Physios 4 M.E.
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020 Read More »
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
The ME Association End of Week Research Round-Up | 08 May 2020
The ME Association End of Week Research Round-Up | 08 May 2020 Read More »
The research bulletin highlights 3 of 6 new studies into ME/CFS and we’ve provided abstracts from all 6 studies published this week.