News | The ME Association - Part 183
Two ME patients have lost a High Court appeal against what they claimed was an "unfair and irrational" approach by the NHS to their condition.
by Jonathan Liew Charities have condemned a court decision to throw out a bid by two ME sufferers to change guidance given to NHS doctors on treating the condition.
Because delivery of our latest quarterly ME Essential was delayed due to technical problems at the printers, we have extended the time in which people can apply to join our Board of Trustees to 30 March.
Eric Smart, our fundraising ambassador-on-a-bike, cycled into Kashmir today on the Indian side of the border with Pakistan – aiming for the Golden Temple at Amritsar, where he intended to stay the night.
Report by Sarah Brealey A graduate from Norwich and his fellow ME sufferer have lost their battle for different types of medical treatment to be available on the NHS.
The High Court has today ruled in favour of NICE on all grounds brought against the Institute in the judicial review of its clinical guideline on chronic fatigue syndrome / Myalgic encephalomyelitis (CFS/ME). The claim against NICE was brought by two CFS/ME patients. The grounds of challenge, all of which the Judge has dismissed, included […]
The legal challenge to the NICE Guideline on ME/CFS was lost in the High Court today – when it was dismissed by Mr Justice Simon. More details as soon as we can get them. Please find The ME Association’s immediate response below.
The MEA has sent in the reply below to an article in the current issue of the New Scientist magazine: Link to original article
There is an article in the current issue of ‘Progress in Neurology and Psychiatry’ about the North Staffs (Stoke on Trent) ME/CFS service. Does anyone who has attended the group treatment programme at this service have any feedback before we enter details onto the MEA list of NHS services? Please email here, if you do.
A petition calling the Prime Minister to send a health minister and the Chief Medical Officer to the Invest in ME conference in Westminster on May 29 has been signed by 700 people so far. For details, and to add your signature, please click here.
According to a Press Association report carried on the Scotland on Sunday website, Kay Gilderdale who was arrested in December after the death of her daughter Lynn has had her bail extended until April 7.
The ME Association has teamed up with a major events organiser to offer supporters the chance to join a charity walk along the glorious South Downs during ME Awareness Week. For an outlay of as little as £15 to cover administration costs, walkers can stride out from Goodwood Racecourse, near Chichester, on Saturday, May […]
The National Institute for Health and Clinical Excellence (NICE) – which published its controversial Guideline for ME/CFS in August 2007 – want to recruit three non-executive directors to their Board.
The next meeting of the All Party Parliamentary Group on M.E., chaired by Dr Des Turner MP, will take place 1.30-3pm, Wednesday 1 April 2009, Committee Room 20, House of Commons. Agenda to be confirmed. Further details will be posted in due course.
Please can anyone recommend an ME-friendly GP in the Bath area, to help one of the inquirers who has contacted our ME Connect helpline? If so, please email here.
University of Bristol press release, 27 February 2008 A new area of ground-breaking research to provide a better understanding of the cause, treatment and prevention of Chronic Fatigue Syndrome/ME in children has secured a prestigious fellowship and funding of £730,000.
Eric Smart, the ME Association’s fundraising ambassador-on-a-bike, is today ending days of waiting for a visa to enter Iran – by letting a plane take the strain as he travels from Baku, the Aberbaijan oil town on the shores of the Caspian Sea, to Karachi in Pakistan, via a short stop-off in Dubai.
A woman who encouraged her partner to hit ME sufferer Kevin Tripp in the Colliers Wood Sainsbury’s supermarket in South London was found guilty of manslaughter, when the jury – which had been considering its verdict for over seven hours – filed back to their seats at Southwark Crown Court this morning.
Food and Drug Aministration extends Hemispherx’s NDA review date for Ampligen(r) as potential preatment for CFS Click her for story