ME Association writes to DWP about Employment and Support Allowance

Friday, July 25 Secretary of State for Work and Pensions Dear Mr Purnell   Having been closely involved in the Department of Work and Pensions consultation process regarding new medical guidance on ME/CFS for the purpose of Disability Living Allowance and Carer’s Allowance application assessments, The ME Association is obviously very interested in the process for replacing Incapacity Benefit with the new […]

‘Woman left brain-damaged by detox diet’

from BBC Online, 23 July 2008 Our medical adviser Dr Charles Shepherd comments:  "The important message here is that taking too much fluid/water (ie overhydration) can be just as dangerous as not taking enough fluid/water (ie dehydration)." A woman has been awarded more than £800,000 after she suffered permanent brain damage while on a detox […]

Summary of APPG on ME meeting held on Wednesday 2nd July 2008

MAY BE REPOSTED INFORMATION FROM THE ME ASSOCIATION This is a summary of key points to emerge from a business meeting and the AGM of the ME All Party Parliamentary Group (APPG).  The meeting was held in Committee Room 20 at the House of Commons on Wednesday 2 July 2008 from 1pm to 3pm. The minutes […]

‘Norwich ME sufferer wins court ruling’ + radio link

At the foot of this story is a link to an mp3 download of items broadcast this week on BBC Radio Norfolk. From the Eastern Daily Press, 19 June 2008. An ME sufferer from Norfolk has won a significant legal victory after a leading judge declared it “in the public interest” for the High Court […]

Vince Cable, Lib Dem deputy leader, asks about ME biomedical research

Vince Cable MP, deputy leader of the Liberal Democrat Party, tabled a question about biomedical research into ME and funding of clinical co-ordinating centres in the House of Commons. A written answer was provided yesterday by Ian Pearson MP, minister of state for science and innovation at the Department for Innovation, Universities and Skills. The […]


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