News | The ME Association - Part 184

The Standing Commission on Carers, which provides independent expert advice to Government on the development and delivery of the National Strategy for Carers, is looking to make public appointments to the Commission.

The trial of one of the two people charged with the killing of Kevin Tripp, the ME sufferer who was the innocent victim of a single punch while he was shopping last year at his local Sainsbury, opened at Southwark Crown Court today. Antoinette Richardson (37) denies a charge of manslaughter, while her partner Tony […]

The Judicial Review of the NICE guideline on ME/CFS took place on Wednesday and Thursday, 11th and 12th February, at the Royal Courts of Justice in London. The hearing was held in Court 76 – a large modernised courtroom tucked away on the third floor of this historic maze of legal activity.

Newspaper coverage so far of the legal challenge to the NICE Guideline on ME/CFS appears below:

From BBC Online, 11 February 2009 Two ME patients today launched a High Court appeal against what they say is an "unfair and irrational" approach by the NHS to their condition.

We’ve just launched an informal version of this website on Myspace, one of the world’s major social networking sites. Click on the picture to find it, sign up and get chatting!

The ME Association will be fully supporting the two people with ME – Douglas Fraser and Kevin Short – who have succeeded in achieving a Judicial Review into the 2007 NICE Guideline on ME/CFS. 

Professor Clive Beggs of the University of Bradford is undertaking a research project into the effects of high altitude exposure on patients with multiple sclerosis (MS) or chronic fatigue syndrome (CFS). He is interested in hearing from anyone whose symptoms have improved during a trip to a high altitude location. If you, or someone you […]

Source: Action for ME News Room The presentation which Professor Julia Newton made to the Cross Party Group on M.E., 21 January 2009, is now available online. Professor Newton, from Newcastle University, told MSPs: " Our research is exploring the biological basis of fatigue in M.E./CFS and we have shown that those with fatigue have […]

For our new "Quick Survey" for February, we would welcome your views on how you rate the service you are receiving from the NHS for your ME/CFS. If you are receiving NHS treatment for any other condition or injury, please do not allow this to colour your views when taking part.

Hillary Johnson, author of ‘Osler’s Web’ – a classic, 720-page investigation into the spread of ME/CFS, published in 1996 – will give a boost to this year’s major UK, ME/CFS research conference when she speaks at a dinner in London on Thursday, May 28.

This is a short summary of key points to emerge from a meeting of The ME Association Board of Trustees that took place at our Head Office in Buckingham on Tuesday 27 January 2009.  Informal discussions also took place on a number of issues the night before.   Please note that this is a summary […]

Trai (right) and her travelling companion Chris Gates. Both have ME. BBC Look North weathergirl Trai Anfield is spending the first six months of 2009 travelling round the word to raise awareness of ME. In the process, she is raising money for ME research.

Important ME artist Steve Craig, who regularly redefines his illness through a series of angular and jagged pictures, will have a big one-man show in north London throughout most of May – ME Awareness Month. Some of his sculpture and poetry will also be on view.

Source: Action for ME newsroom Two letters, one from Neil Stanghan from Bideford and the other from Karen Rippon from Ceredigion, voicing their scepticism and concerns about the Lightning Process. Both have M.E. Neil is worried that this miracle cure entails spending a large amount of money and Karen has tried the Lightning Process and […]

Barriers to the use of practice nurses in the delivery of effective management strategies for the care of people with ME/CFS have been identified in a study published today by BMC Nursing, an open-access journal publishing original peer-reviewed articles on all aspects of nursing.

New research suggests that low levels of vitamin D may be linked to mental/cognitive decline.  Click to view article The MEA has a new information leaflet covering vitamin D.  MEA literature can be obtained using the website ORDER FORM (see ‘Quick Links" to the left).

We notched up the 500,000th visitor at this website at 7.16pm this evening!

The European Court of Justice has ruled that workers who are off sick for the whole of an annual leave year are entitled to a period of four weeks paid annual leave despite the fact they they are not actually at work. National courts can decide whether the leave is taken during that year or […]

Patient representatives campaigning for improvements to the NHS service for people with ME/CFS in Norfolk and Suffolk – which has been without a lead consultant since the retirement of Dr Terry Mitchell – launched a website today to enlist the support of ME/CFS sufferers, their families and carers.