News

It is with great sadness that we report the death of Mr Kevin Tripp, who died last night after an incident the night before in the check-out queue at Sainsbury’s store in Merton, south west London.

A short video about the PRIME research project – which integrates patient experience into social science research on ME/CFS – has been placed on the Warwick University website.

Arrangements have been finalised for the Sussex and Kent ME/CFS Society’s medical conference at Hove Town Hall on Friday, September 26.

Over a million and a half pages on the website had been read by early morning today – helping to maintain this site’s Google ranking as the most visited  site on the web for information about ME

One of our members is having problems with blurred vision over medium to long distances.

With the weather turning out to be a scorcher, the Tyne Bridge – the iconic landmark joining Newcastle-upon-Tyne to Gateshead – was the scene of a mass abseil in aid of charity on Sunday 8 June.

Letters page, The Argus, Brighton, 7 June 2008 There has been much coverage in the media recently about the Department for Work and Pensions wanting to get people off invalidity benefit and into work. 

The next meeting of the All Party Parliamentary Group on ME will take place on Wednesday, July 2 – when there will be a presentation on child protection issues affecting families where there is a young person with ME. 

Minutes of the meeting of the All-Party Parliamentary Group on M.E. held at 4pm on Tuesday, 22 January 2008, in Committee Room 17, House of Commons.

Although the role of melatonin in the management of sleep disturbance in ME/CFS remains uncertain, some people do use this product and claim that it is of benefit.  But, with the Department of Health expressing concerns over safety, most doctors have been unwilling to prescribe melatonin and instead leave patients to search out their own source of supply.

Representatives from BRAME (Christine and Tanya Harrison) and The ME Association were present ‘Below the Bar’ in the House of Lords on Monday 2 June to listen to a series of questions to Health Minister, Lord Darzi, on the subject of ME/CFS.   There was a very good attendance, including some well known parliamentarians, from all sides […]

From ‘The Sun’, 3 June 2008; story by Dulcie Pearce BRAVE Vikki George has been bed-bound with ME for the past six years. But instead of wallowing in self-pity, the pretty 23-year-old has devoted her life to writing to other sick youngsters to offer them hope and support.

Jacqui Watson, who has just restored a 1962 Triumph Tiger Cub motorcycle which has been off-road for 30 years, is spending the summer riding it round the 33 counties of Scotland to raise funds for The ME Association and the National Association for Bikers with Disabilities.

In the search for a powered wheelchair that he couldn’t afford to buy himself, a 43-year-old man with ME and his social worker turned to The Mobility Trust, a national charity providing powered wheelchairs and scooters for severely disabled chldren and adults who cannot obtain them any other way.

Back in April The MEA wrote to the Royal College of General Practitioners (RCGP) to ask them to change their decision to classify CFS as a mental health disorder in an important training document for GPs:  Care of People with Mental Health Problems. We have now received a very disappointing reply.

Adam Findlay, aged 16, from the Weston-super-Mare was your average teenager, playing for his local and school rugby team and socialising with friends until, at the tender age of 13 he was struck down with ME. Suddenly his life changed.

The ME Association has just been approached by a major TV news channel which is collecting stories about people who regret the day when the pain-killing drug, co-proxamol, was taken off prescription – except for doctors using it on a very restricted ‘named patient’ basis.

  Photo: Brian Grech From silent sufferer to eloquent and beautiful advocate for ME – that’s the astonishing story of sixth-former Denise Vella, who lives in Malta.

An ME Question Time – an opportunity to discuss what’s happening in the ME world today – will be held in Colchester, Essex, on Saturday, October 11.

Eric Smart, who is cycling from Aberdeen to Australia for The ME Association popped into the village of Weston, near Spalding, South Lincs, on Friday, May 16 – 561 miles into his epic 15,000-mile journey. He plans to reach Aberdeen in South Australia some time in 2010.