The Lost Years by Wend Jordan.
My name is Wend and I have been ill with myalgic encephalomyelitis since at least 1993.
I’m not sure if the flu jab triggered it but I remember not feeling well soon afterwards.
I only found out that what M.E. was when reading a Daily Mail article on my way back from my honeymoon. The symptoms were the same as I was experiencing.
I went to my GP at the time with the article to be told that M.E. did not exist as a recognised illness!
This prevented me from seeking medical help until I decided to change GPs and found one who believed me and who better understood the condition.
I was offered amitriptyline as a treatment but that made no difference and other treatments over the years have had a similarly negative effect.
I was 23 when I first become ill and I haven’t been able to work since 1994. It is very isolating, and it affects my confidence.
There is still such a stigma attached to M.E. that I rarely
talk about it even if people ask me about my illness – I’m worried by their
I also have hypothyroid as well as arthritis. This year I will be 50 years old. I would love a cure and to be pain free.
My pain is a constant every day and it really drags me down. I couldn’t cope without the support of my loved ones – especially my twin sister Tracey and my hubby Antony.
ME Awareness Month – May 2020
The Lost Years
The ME Association
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