Two key figures in worldwide ME advocacy – Brian Vastag and Beth Mazur – review the research.
Hannah Collins – there’s good cheer in that right good cuppa!
There were two new research publications this week, and we’ve updated the MEA Research Index.
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
Two more fundraising champions who are desperate for the ME Association to survive.
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
“Without doubt my biggest regret has been that I have not been able to have my own family.”
The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.