“Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
May 2020
‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
“If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020 Read More »
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”
ME Association Research: New study to measure physiological changes in daily activity in people with ME | 12 May 2020
This exciting study will examine the physiology of M.E. and is led by researchers from Leicester, Oxford and Manchester Universities and Physios 4 M.E.
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020 Read More »
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
The ME Association End of Week Research Round-Up | 08 May 2020
The ME Association End of Week Research Round-Up | 08 May 2020 Read More »
The research bulletin highlights 3 of 6 new studies into ME/CFS and we’ve provided abstracts from all 6 studies published this week.
Higher risk of developing ME after coronavirus diagnosis, warns University of Leicester | 08 May 2020
“The link between severe viral infection and M.E. is clear, as evidenced in the previous outbreaks of SARS and Epstein Barr.”
Coronavirus and ME by Rebecca Smith | 07 May 2020
Coronavirus and ME by Rebecca Smith | 07 May 2020 Read More »
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
MEA Summary Review: Is mystery factor in plasma causing viral immunity in ME/CFS? | 06 May 2020
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
Stalwart champion of the ME community retires after distinguished parliamentary career | 01 May 2020
The Countess of Mar has decided to retire from the House of Lords, but will continue to work with Forward-ME.
The ME Association End of Week Research Round-up and Index Update | 01 May 2020
The ME Association End of Week Research Round-up and Index Update | 01 May 2020 Read More »
The weekly research bulletin provides summary explanations of 3 new studies into ME/CFS and we’ve updated the central Research Index.