NICE Guideline Review: Call for Evidence | 02 September 2019
NICE Guideline Review: Call for Evidence | 02 September 2019 Read More »
NICE is asking stakeholders for evidence to support the ongoing review. The deadline is 4th October by 5pm.
Canada invests $1.4M in biomedical research to improve the quality of life of people living with M.E. | 23 August 2019
It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.
Relationship between physiotherapists and people with M.E. is poor but there is potential to improve | 22 August 2019
Physios 4 ME report on the results from the MEA website survey that took place in July.
Establishing Protocols to Assess Mitochondrial Function in ME/CFS by Dr Karl Morten | 21 August 2019
Dr Morten provides additional comment on the recent validation attempt of the Acumen test and we include a detailed report.
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019 Read More »
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Independent researchers determine mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019
The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019 Read More »
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019 Read More »
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
ME Association July Summary of ME/CFS Published Research | 05 August 2019
ME Association July Summary of ME/CFS Published Research | 05 August 2019 Read More »
We’ve updated the central Research Index and feature 13 ME/CFS research studies from July 2019.
The Guardian: ME and the perils of internet activism | 29 July 2019
The Guardian: ME and the perils of internet activism | 29 July 2019 Read More »
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019 Read More »
This latest review looks at energy production, and the ongoing search for clues as to what might be causing problems in ME/CFS.
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019 Read More »
We’ve been talking about mental health on social media. Russell explains how he’s faced up to these challenges over the years.
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019 Read More »
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019 Read More »
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”