ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid Read More »
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
The ME Association Research Round-up and Central Index Update
The ME Association Research Round-up and Central Index Update Read More »
We have updated the central research index, and this week feature a study that examined proteins in ME/CFS.
‘Thousands of people with covid complications turn to ME Association for support’ | Sky News
“We’ve got this tsunami of people that were previously strong adults who are just not getting better and general practice is just not equipped for these people”. – Dr Shepherd
“I was infected with coronavirus in March, six months on I’m still unwell,”
“I was infected with coronavirus in March, six months on I’m still unwell,” Read More »
Charlie Russell, 27, is one of an estimated 600,000 people with post-Covid illness, a condition that may give an insight into ME – with Dr Charles Shepherd.
Potential research into Long-Covid and ME/CFS at the ME Biobank
Potential research into Long-Covid and ME/CFS at the ME Biobank Read More »
The ME Biobank team with Dr William Weir are hoping to conduct research into Post-Covid and ME/CFS. Please register your interest in taking part.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS Read More »
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise Read More »
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes Read More »
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
Merryn’s Story: Severe ME Week 2020
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an
Severe ME Week 2020: Sophia’s Story
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
Meet The Scientist: Professor Chris Ponting – DecodeME
Meet The Scientist: Professor Chris Ponting – DecodeME Read More »
Chris Ponting talks about the DecodeME study that seeks to understand the causes of M.E. and could help advance the discovery of effective treatments.
Jessica Taylor-Bearman wins The People’s Book Prize!
Jessica Taylor-Bearman wins The People’s Book Prize! Read More »
‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.