The hour-long film Voices from the Shadows is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of VOICES after clicking the “rent for $3” button.
Vimeo requires viewers to register with a name, email address and password.
But the film-maker Natalie Boulton warns that the film is not considered suitable viewing for children and young people with ME. It is intended for adults who are not familiar with the illness.
The film shows how harmful ignorance and misunderstanding about the illness Myalgic Encephalomyelitis or ME can be.
Patients with mild or moderately severe ME have become very severely ill when their illness is mismanaged: largely due to the way many different conditions have been muddled together by inadequate definitions and vague criteria.
Lack of recognition of the delayed exacerbation of ME symptoms following overactivity and over exposure to stimuli has caused many patients to deteriorate and become chronically and severely ill.
There is very little recognition of the clinical picture of very severe ME and these patients then become vulnerable to being misdiagnosed with functional illness. Alongside this, many patients are misdiagnosed as having CFS/ME, and their other illnesses remain undiscovered and untreated.
Natalie writes: “Please share this post but do not omit the warning that it could be very distressing for young people with ME to view it. Please try to prevent it being inappropriately accessed.”