Forward ME chair shares a message on Severe ME Day
Forward ME chair shares a message on Severe ME Day Read More »
Severe ME Day (08.08.26) For most people, it is a […]
News
Rebecca’s story: speaking out to advocate for greater awareness during Severe ME Week
Rebecca’s story: speaking out to advocate for greater awareness during Severe ME Week Read More »
“The reality is that there is currently no clear treatment
Hailee’s story: lived experience with severe ME
Hailee’s story: lived experience with severe ME Read More »
“Hope is what keeps me going. It is what helps
WAMES met with Health Minister to discuss ME and Long Covid services in Wales
WAMES met with Health Minister to discuss ME and Long Covid services in Wales Read More »
Photo of Mabon ap Gwynfor Image cropped (original image here),
Help Shape the Future of NHS Care: HERITAGE is Now Recruiting!
Help Shape the Future of NHS Care: HERITAGE is Now Recruiting! Read More »
What is the HERITAGE study? The HERITAGE study aims to address an
Naomi’s story: lived experience of Severe ME
Naomi’s story: lived experience of Severe ME Read More »
“I want to share my lived experience of severe ME as I
Forward ME Briefing Paper on Clinical assessment of people with very severe ME/CFS
Forward ME Briefing Paper on Clinical assessment of people with very severe ME/CFS Read More »
Dr Charles Shepherd, MEA Hon. Medical Adviser, has written a
Research: A large international study on Fibromyalgia has identified potential risk factors across patients’ genes
Nature has published a research study entitled The genetic architecture
NHS England’s ME/CFS e-Learning Modules FOI Results reveal lack of uptake
NHS England’s ME/CFS e-Learning Modules FOI Results reveal lack of uptake Read More »
In January 2026, and repeated in June, @Lucibee, an advocate for people with ME/CFS submitted
ME/CFS Service Closures Without Consultation: What You Need to Know
ME/CFS Service Closures Without Consultation: What You Need to Know Read More »
Across the UK, there are growing reports of ME/CFS specialist
DHSC Delivery Plan on ME/CFS – One year on
DHSC Delivery Plan on ME/CFS – One year on Read More »
The Department of Health and Social Care (DHSC) Delivery Plan
ME Association comments on a report containing unsubstantiated claims regarding ‘brain retraining’ as a cure for ME/CFS and Long Covid
Today (23rd July), the iPaper published an article entitled ’75
ME Association’s statement on the appointment of Yvette Cooper as Secretary of State for Health and Social Care
Image Credit: Yvette Cooper © House of Commons/Roger Harris, cropped
MP Julian Smith asks parliamentary questions regarding the lack healthcare provision for people with very severe ME
Last week, MP Sir Julian Smith (Conservative, Skipton and Ripon) tabled
Research: New Study provides first evidence of Dopamine System Injury in the brain of Long Covid patients
A new brain imaging study led by researchers at the Canadian
BBC News: Charity concerns over changes to ME services
BBC News: Charity concerns over changes to ME services Read More »
BBC News have reported on the ME Associations concerns around
Learna CPD module for healthcare professionals updated!
Learna CPD module for healthcare professionals updated! Read More »
Learna’s free, highly rated CPD-accredited module on ME/CFS, available for GPs
News Medical: Antihistamines show modest benefits for long Covid fatigue treatment
News Medical: Antihistamines show modest benefits for long Covid fatigue treatment Read More »
A new paper, published in The Lancet on July 8th
NICE guideline on ME/CFS: MPs discuss the failure of ICBs (integrated care boards) to implement NICE guideline recommendations
Tessa Munt MP, chair of the All Party Parliamentary Group
GOV UK shares interim report on Timms Review of PIP, calling current system ‘not fit for purpose’
Today (9th July), the government have shared a press release