News | The ME Association - Part 2

CMO letter GHD/CMO(2021)4, dated 9 March 2021, includes the statements:  10. You will be aware that agreeing the inclusion of a variety of medical conditions and underlying health risks for group 6 has been highly complex. There are of course many rare diseases and conditions, and guidance in the Green Book states that the group […]

By Dylan Murphy, Guest Blogger, ME Association  Dr Erin Cvejic teaches biostatistics and the principles of statistical interference in the School of Public Health and the Brain and Mind Centre at the University of Sydney, Australia. Over the last 5 years he has written several articles on the issue of sleep and cognitive function in people with […]

Dr Alastair Miller, Professor Paul Garner and Professor Peter White are not correct when they state that graded exercise therapy (GET) is a safe and effective treatment for ME/CFS.  Guardian Letters: Long Covid & Graded Exercise Therapy | 11 March 2021  Having reviewed all the published evidence from clinical trials, the new NICE guideline on […]

Anonymous Feedback I read the article ‘Personal Relationships: Intimacy and ME/CFS’ and by the end of it tears were pouring from my eyes.   It is so honest and absolutely spot on. I had been single, and suffering from ME for many, many years when I met the man who is now my husband.  I think my experience […]

Russell Fleming, Content Manager, ME Association  The new NICE clinical guideline for ME/CFS will be published at the end of April or early in May. Hopefully, it will be in time for ME Awareness Week.  The guideline committee – including Dr Charles Shepherd – are currently considering stakeholder feedback following release of the draft guideline in November last […]

This is an organisation that was established in America but has grown to include over 50 representative organisations from around the world. The key reason we joined is because we want to be part of the continuing narrative that surrounds Long Covid and ME/CFS. We want to be a part of the discussions that relate […]

“The ideal situation, as we have actually got in Cornwall, is where the Long Covid clinic and the ME/CFS clinic are separate but they are linked. They are sharing knowledge, especially about management of the two conditions, but they are separate.” Dr Charles Shepherd.  Russell Fleming, Content Manager, ME Association  Yesterday evening, Dr Charles Shepherd (Hon. […]

Warning: Contains adult content. Intimacy among those who are disabled by ME/CFS can be challenging, and it can be just as difficult to talk and to write about. But personal relationships are an important issue and it is something that we have been asked to feature by people in the community. Fiona has M.E., and […]

Quick update on the situation in Gloucestershire following the BBC news item and where Alex Chalk MP and Sir Geoffrey Clifton-Brown MP have been very helpful. Although their intervention has not resulted in a decision to automatically include anyone with ME/CFS into group 6, it does mean that GPs can use their clinical judgement to […]

The vexed question of the failure by many GPs to give people with M.E. a priority for Covid vaccination was covered by this short item on the BBC TV Points West news programme on 4 March 2021. BBC health correspondent Matthew Hill interviewed Stephanie Kempson, who has M.E., about her concerns about not being allowed […]

Dr Charles Shepherd Since January we have been collecting feedback from people with ME/CFS who have had a Covid vaccine. At the start, this was mainly from health and social care workers who have ME/CFS and those over 70 years of age. But with vaccination now being carried out in people who have health conditions […]

Sean O’Neill Dr Shepherd was interviewed by Sean O’Neill for this article which appeared in the print edition of The Times yesterday. It highlights some of the confusion and frustration people with ME/CFS are experiencing when trying to gain priority access to the Covid vaccine. Visit this section of the MEA website to access free […]

Neil Riley, Chairman, ME Association Should people with ME/CFS have the Covid vaccination? That’s a hard but not impossible question to answer. You would not want to get Covid. It’s a terrible disease. You don’t want to make your ME/CFS worse. No one does. And getting the Covid infection on top, would make life even […]

ANS dysfunction can cause dizziness, light-headedness, blurred vision, mental confusion, nausea and feeling faint, or even fainting.

“It’s just a postcode lottery, isn’t it?”, says Claire Tripp, whose 19-year-old daughter Emma has severe ME.

“The people who have been shouting about M.E. and CFS for the last 20 years are suddenly being heard.”

The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!

Paramedic’s children want to raise lots of money for ME research

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