News | The ME Association - Part 2

MEAW21: ME Association Health & Social Care Awareness Campaign

Russell Fleming, Content Manager, ME Association  The new NICE clinical guideline for ME/CFS will be published at the end of April or early in May. Hopefully, it will be in time for ME Awareness Week.  The guideline committee – including Dr Charles Shepherd – are currently considering stakeholder feedback following release of the draft guideline in November last […]

The ME Association has joined the Long Covid Alliance

This is an organisation that was established in America but has grown to include over 50 representative organisations from around the world. The key reason we joined is because we want to be part of the continuing narrative that surrounds Long Covid and ME/CFS. We want to be a part of the discussions that relate […]

BBC Radio Ulster: Should NHS ME/CFS specialist service provision be made available to people with Long Covid?

“The ideal situation, as we have actually got in Cornwall, is where the Long Covid clinic and the ME/CFS clinic are separate but they are linked. They are sharing knowledge, especially about management of the two conditions, but they are separate.” Dr Charles Shepherd.  Russell Fleming, Content Manager, ME Association  Yesterday evening, Dr Charles Shepherd (Hon. […]

Personal Relationships: Intimacy and ME/CFS

Warning: Contains adult content. Intimacy among those who are disabled by ME/CFS can be challenging, and it can be just as difficult to talk and to write about. But personal relationships are an important issue and it is something that we have been asked to feature by people in the community. Fiona has M.E., and […]

Update on Gloucestershire situation after BBC news item

Quick update on the situation in Gloucestershire following the BBC news item and where Alex Chalk MP and Sir Geoffrey Clifton-Brown MP have been very helpful. Although their intervention has not resulted in a decision to automatically include anyone with ME/CFS into group 6, it does mean that GPs can use their clinical judgement to […]

BBC Points West: Dr Shepherd puts the case for covid vaccine priority for people with ME/CFS

The vexed question of the failure by many GPs to give people with M.E. a priority for Covid vaccination was covered by this short item on the BBC TV Points West news programme on 4 March 2021. BBC health correspondent Matthew Hill interviewed Stephanie Kempson, who has M.E., about her concerns about not being allowed […]

The Times: Asthma and ME sufferers miss out in database chaos.

Sean O’Neill Dr Shepherd was interviewed by Sean O’Neill for this article which appeared in the print edition of The Times yesterday. It highlights some of the confusion and frustration people with ME/CFS are experiencing when trying to gain priority access to the Covid vaccine. Visit this section of the MEA website to access free […]

Should people with ME/CFS have a Covid-19 vaccination?

Neil Riley, Chairman, ME Association Should people with ME/CFS have the Covid vaccination? That’s a hard but not impossible question to answer. You would not want to get Covid. It’s a terrible disease. You don’t want to make your ME/CFS worse. No one does. And getting the Covid infection on top, would make life even […]

ME Essential Magazine: Spring Issue now available!

The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!


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