**Trigger Warning: Upsetting Content**
Petition Introduction
Caroline Roberts, once an active and loving mum to three, is suffering from very severe Myalgic Encephalomyelitis (ME/CFS). This debilitating condition has left her entirely bed-bound, living in darkness, and in need of urgent medical care. Just a week ago, Caroline was admitted to NHS Leicester Royal Infirmary Hospital in a worryingly deteriorated state due to inability to receive nutrition and hydration
Petition Summary (AI & reviewed by MEA)
- Caroline Roberts has very severe ME/CFS and is completely bed-bound.
- She was admitted to Leicester Royal Infirmary after her health deteriorated due to lack of nutrition and hydration.
- Supporters say her condition has worsened in hospital and fear a premature discharge could be life-threatening.
- They are calling for a specialist ME/CFS review, appropriate treatment, and for her to remain in hospital until it is safe to discharge her.
- The case highlights concerns about healthcare professionals' understanding and treatment of severe and very severe ME/CFS.
Change Petition
Supporters have organised a petition on behalf of her partner, Jack McDonald. It urges people to sign and share by concluding:
Caroline’s story is not an isolated case. Countless others with ME/CFS endure similar neglect due to lack of awareness and understanding. We must advocate for better healthcare practices, ensuring patients receive the necessary care and attention they deserve. By signing this petition, you stand with Caroline and others suffering from ME/CFS, urging better safeguards and patient safety protocols that will uphold the dignity and right to life of those afflicted. Your signature can help bring about the necessary change in protocol and enhance patient advocacy and safety measures for individuals like Caroline. Please sign this petition to ensure Caroline's healthcare needs are respected and adequately met.
MEA Comment
The ME Association has connected with family members and offered to discuss her medical care with healthcare professionals at NHS Leicester Royal Infirmary Hospital.
Dr Charles Shepherd,
Trustee and Hon. Medical Adviser to the ME Association,
Member of the 2018-2021 NICE guideline on ME/CFS committee,
Member of the 2002 Chief Medical Officer's Working Group on ME/CFS
