News | The ME Association- Part 187

‘Sick of the system’

From The Guardian, October 22 After becoming ill, Melissa Viney had to give up her job and go on to incapacity support. Then she tried working again. But it’s not easy, she found, to escape the benefits trap.

ME Association response to Welfare Reform Green Paper

Department for Work and Pensions Green Paper: No one written off: Reforming welfare to reward responsibility Around 2.7 million people currently claim Incapacity Benefit (ICB).  The benefit is paid to people who are judged to be incapable of work, initially by a GP and then at a later date by a Benefits Agency doctor.

Over 400,000 visitors to this website

By 6.30pm this evening, a total of 400,862 people had visited this website – reading 2,085,587 pages between them. We started counting on 7 May 2007. The site has consistently been top of the Google ratings for information about M.E. since its re-launch in January last year.

Amazon explorer reaches the quarter-way mark

After six months trekking in the desert and hacking through jungle, explorer Ed Stafford has now reached the quarter-way mark in his 4,000-mile quest to become the first man to walk without a break from the source to the mouth of the mighty River Amazon.

Dr Betty Dowsett in hospital

Just before the start of the ‘ME Question Time’ meeting in Colchester on Saturday we were given the news that Dr Betty Dowsett had been taken to hospital.

Brief notes: APPG on ME meeting, October 8

These are brief notes on key points to emerge from the meeting of the All Party Parliamentary Group (APPG) on ME that was held from 3pm to 5pm in Committee Room 18 at the House of Commons on Wednesday 8 October 2008. Please note that these are not the APPG minutes.  The APPG minutes contain a far more comprehensive […]

Minutes of the APPG on ME, 2 July 2008

Minutes of meeting of All Party Parliamentary Group on M.E. held at 1pm, Tuesday 2nd July 2008 Committee Room 20, House of Commons  (The agenda for the next meeting on 8th October can be found here).

Over 2,000,000 pages read at this website

By 2.23 pm this afternoon, a total 2,000,678 pages had been read at this website since we started counting on 7 May 2007  – and the number is going up by about six thousand every day. The number of visitors to the website in the lst 16 months has been 383,309. The ME Association website […]

Dr Charles Shepherd to speak at Italian ME/CFS Congress

ME Association medical adviser Dr Charles Shepherd is to speak at an international conference on ME/CFS in Italy on Friday. Another British participant will be the epidemiologist, Dr Derek Pheby, who heads up the UK National Research Observatory on ME/CFS. The conference has been organised by University of Pavia immunologist Dr Lorenzo Lorusso. Details of programme […]

Your MP, Welfare Reform and the APPG on M.E.

As you may know from the Action for ME and MEA websites, James Purnell MP, Secretary of State for Work and Pensions, has agreed to address the next APPG on M.E., about the Welfare Reform Green Paper, ‘No one written off: reforming welfare to reward responsibility.’

Unofficial wesite for the NICE Guideline Judicial Review

Experiences from people with ME/CFS who have been offered Cognitive Behaviour Therapy and/or Graded Exercise Therapy since the NICE Guideline on ME/CFS was published in August 2007 are wanted by a new website launched today to support the the Judicial Review – which is expected to take place over three days in October or November. 

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