President Obama has informed a US-based M.E. advocate that one of his country’s leading medical research institutions will continue to encourage research into ME/CFS through two programmes that are investigating the aetiology, diagnosis, pathophysiology and treatment of the illness – which is thought to affect 1,000,000 Americans.
In a long-awaited reply to a question asked of the President by Mrs Courtney Miller when he spoke at a town hall meeting in Reno, Nevada, in April last year, Obama wrote:
“NIH [the National Institutes of Health, based at Bethesda in Maryland] expects these research programs will enhance our knowledge of the disease process and provide evidence-based solutions to improve the diagnosis, treatment, and quality of life of all persons with ME/CFS”.
In a two-page letter posted to Mrs Miller on July 26 and released on the internet yesterday, Obama reveals that before he had replied he had called for a report on the status of CFS research from NIH director Dr Francis S Collins and had now briefed his deputy chief of staff for policy, Nancy-Ann DeParle, to keep Mrs Miller in touch with developments.
And he wrote that the multi-site trial supported by the National Institute of Allergy and Infectious Diseases to establish whether a murine retrovirus is linked to CFS [the so-called Lipkin Study] is “of unprecedented scale”.
To read Obama’s letter in full, click HERE.