News

Adam Findlay and his MedicAlert sport band

Adam Findlay, aged 16, from the Weston-super-Mare was your average teenager, playing for his local and school rugby team and socialising with friends until, at the tender age of 13 he was struck down with ME. Suddenly his life changed.

Co-proxamol in the news again?

The ME Association has just been approached by a major TV news channel which is collecting stories about people who regret the day when the pain-killing drug, co-proxamol, was taken off prescription – except for doctors using it on a very restricted ‘named patient’ basis.

A star is born – in Malta!

  Photo: Brian Grech From silent sufferer to eloquent and beautiful advocate for ME – that’s the astonishing story of sixth-former Denise Vella, who lives in Malta.

Letters page, The Sun, May 12

Dear Sir It was a bad day for children when ME got called by the barmy name ‘Chronic fatigue syndrome’. Some of our children can’t speak or swallow and have to be tube fed. That is so not ‘fatigue’. That is devastation. Jane Colby Executive Director The Young ME Sufferers Trust

Look in on our ME-relevant advertisers

Our advertisers include a Welsh company that makes chemical-free mattresses, a holiday and retreats centre in Gascony, an ammonia-free hairdresser in Keighley (West Yorkshire) and an electric bike company helping people enjoy their pedal-power. They’re all relevant to people with ME/CFS and their carers. Click here to visit them  

‘What it really means to be healthy’

From The Guardian, May 6 After a bout of glandular fever at university, Keith Kahn-Harris developed chronic fatigue syndrome, from which he still suffers. He explains how this debilitating and misunderstood illness has changed his life for ever.

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