News

Letters page, The Sun, May 12

Dear Sir It was a bad day for children when ME got called by the barmy name ‘Chronic fatigue syndrome’. Some of our children can’t speak or swallow and have to be tube fed. That is so not ‘fatigue’. That is devastation. Jane Colby Executive Director The Young ME Sufferers Trust

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‘What it really means to be healthy’

From The Guardian, May 6 After a bout of glandular fever at university, Keith Kahn-Harris developed chronic fatigue syndrome, from which he still suffers. He explains how this debilitating and misunderstood illness has changed his life for ever.

Royal Society of Medicine meeting on CFS

MAY BE REPOSTED As previously announced, The ME Association was allowed to set up a display stand at the meeting on Chronic Fatigue Syndrome (NB: no mention of ME in the official title) for health professionals (only) that was held that at the Royal Society of Medicine (RSM) on Monday 28 April.

NICE guidelines on ME/CFS – research outcomes

Sutton and Cheam MP Paul Burstow, who is the Liberal Democrat chief whip in the Commons, put down a written question for the Health Secretary about research outcomes of the National Institute for Health and Clinical Guidance clinical practice guides for ME/CFS, which were published in the Autumn of last year. He received a written […]

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