Article from Isle of Man Today published 28 May 2021 A man who has lived with ME since 2010 says that the current level of health care for the condition …
‘Medieval’ M.E. care on Isle of Man, says sufferer Read More »
Knowing how to care I wish I knew how to care, what he wants and needs. It’s like being a very bad mind reader at times. Over the years I …
Emotions of carers who care for people with ME/CFS Read More »
Karen Buckley challenged herself to climb the Yorkshire Three Peaks to raise money for the ME Association and she smashed them all at the end of May. She’s pictured at …
Sarah Elsby is back in the fundraising frame – over a year since she first set out on six big walking challenges for the ME Association. Sarah, whose mother Lynn has …
Proud finale for the lady who had beetled back home to Bolton! Read More »
Pretending everything is Normal It took seven months for John to get an ME diagnosis. I think we were lucky. It got harder and harder trying to keep things normal …
The challenges carers face when caring for people with ME/CFS Read More »
Fiona Lowenstein writes in the Guardian of her experience of resting and pacing to recover from Long COVID and highlights the overlap with ME/CFS. I am not the first person to …
The ME Association is a national charity that supports, informs, campaigns, and invests in biomedical research for people with the neurological disease myalgic encephalopathy also known as chronic fatigue syndrome (ME/CFS). We are seeking a Welfare …
Situations Vacant: We want a Welfare Benefits Adviser to join our team Read More »
I’m Andrew and have had ME/CFS for over 20 years. It’s been a difficult road, but you have seen me over that time to try to help. Some of you have been helpful and some have been understanding, and I thank you for that.
Are you a carer? I am. I am not a care worker; I am an unpaid carer. One day 13 years ago, out of the blue, my son collapsed and …
The new paper in Nature looks at the possible role of two specific neurotransmitter receptor autoantibodies in Long COVID and ME/CFS
I’m ashamed to say I have M.E. I’ve collapsed in the street and when I’ve managed to explain that I don’t need an ambulance, it’s just M.E, I see the …
Please be aware of the effects of going through the peri-menopause, and then the menopause, for women with ME.
But who are they? The ME/CFS Priority Setting Partnership is run by a steering group of people with ME, carers and clinicians. The project is funded by some of the …
ME/CFS Priority Setting Partnership: 2 weeks to send research ideas Read More »
If you’d like to purchase a raffle ticket on Sunday you can do so using Fiona’s Just Giving link:
Over two years ago, we launched the ‘Real M.E’ campaign as we were fed up with misrepresentations of ME/CFS images in the mainstream media. We want everyone to know that …
A recent publication by Blauensteiner et al. based in Austria has examined molecules which help make proteins (mircroRNAs) in the layer of cells lining blood vessels (endothelium). The results of …
MEA Research Review: Altered Endothelial Function in ME/CFS Blood Plasma Read More »
The weekly research round-up now includes recent publications about ME/CFS and about Long Covid. We highlight several studies that have particularly caught our interest and follow these with the full …
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »
Please note: The raffle will take place from 9am until 9pm Sunday 20th, June 2021. Please do not donate any money before then as gambling rules state the raffle must …
