Open Letters to Healthcare Professionals from people with ME/CFS – Part 10: Teri
Seeing what’s happened with Long Covid has been awful. It is also frustrating watching the scientific effort now to find a cure when M.E. has been ignored for so long…
Month: June 2021
BMJ Rapid Response Re: ME/CFS and Long Covid: Moving beyond the controversy – by Dr Charles Shepherd
An article by Melanie Newman was published in the British …
Oliver Payne – running to support his rugby-playing brother Joe, now stricken by M.E.
Rugby player Joe Payne got in touch to tell us …
Oliver Payne – running to support his rugby-playing brother Joe, now stricken by M.E. Read More »
The Telegraph: Everything we know about long Covid
A new study reveals that a third of Covid sufferers …
The Telegraph: Everything we know about long Covid Read More »
Open Letters to Healthcare Professionals from people with ME/CFS – Part 9 Gaynor
The new NICE Clinical Guideline for ME/CFS will be published on 18 …
Open Letters to Healthcare Professionals from people with ME/CFS – Part 9 Gaynor Read More »
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up
The weekly research round-up now includes recent publications about ME/CFS …
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »
‘Medieval’ M.E. care on Isle of Man, says sufferer
Article from Isle of Man Today published 28 May 2021 …
‘Medieval’ M.E. care on Isle of Man, says sufferer Read More »
Emotions of carers who care for people with ME/CFS
Knowing how to care I wish I knew how to …
Emotions of carers who care for people with ME/CFS Read More »
Karen smashed the Yorkshire Three Peaks
Karen Buckley challenged herself to climb the Yorkshire Three Peaks …
Proud finale for the lady who had beetled back home to Bolton!
Sarah Elsby is back in the fundraising frame – over a …
Proud finale for the lady who had beetled back home to Bolton! Read More »
The challenges carers face when caring for people with ME/CFS
Pretending everything is Normal It took seven months for John …
The challenges carers face when caring for people with ME/CFS Read More »
Guardian Article: I rested my way to recovery from long Covid. I urge others to do the same
Fiona Lowenstein writes in the Guardian of her experience of resting …
Situations Vacant: We want a Welfare Benefits Adviser to join our team
The ME Association is a national charity that supports, informs, campaigns, and …
Situations Vacant: We want a Welfare Benefits Adviser to join our team Read More »
Open Letters to Healthcare Professionals from people with ME/CFS – Part 8 Andrew
I’m Andrew and have had ME/CFS for over 20 years. It’s been a difficult road, but you have seen me over that time to try to help. Some of you have been helpful and some have been understanding, and I thank you for that.
Long Covid and ME/CFS: Autoantibodies, neurotransmitters and autonomic nervous system dysfunction
The new paper in Nature looks at the possible role of two specific neurotransmitter receptor autoantibodies in Long COVID and ME/CFS
Open Letters to Healthcare Professionals from people with ME/CFS – Part 7 Nancy
Please be aware of the effects of going through the peri-menopause, and then the menopause, for women with ME.
ME/CFS Priority Setting Partnership: 2 weeks to send research ideas
A major project is looking for your input. They want …
ME/CFS Priority Setting Partnership: 2 weeks to send research ideas Read More »
Win a beautiful quilt stitched by people from the M.E Community for a price of £1 per ticket!
Win this beautiful quilt stitched by people from the M.E. …