January 2018

The Press and Journal: The ME generation want better care across Scotland | 30 January 2018

Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.

The Press and Journal: The ME generation want better care across Scotland | 30 January 2018 Read More »

Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.

MEA Summary Review: The dysfunctional autonomic nervous system in ME/CFS | 24 January 2018

An ME Association research summary that explains the autonomic nervous system, recent research findings, and provides some self-help tips for symptom relief.

MEA Summary Review: The dysfunctional autonomic nervous system in ME/CFS | 24 January 2018 Read More »

An ME Association research summary that explains the autonomic nervous system, recent research findings, and provides some self-help tips for symptom relief.

MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018

The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.

MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018 Read More »

The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.

Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018

Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.

Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018 Read More »

Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.

Scottish Parliament to host screening of Unrest – Invite your MSP to attend | 17 January 2018

Unrest is being shown at an event for MSPs at the Scottish Parliament on 30th January 2018. If you live in Scotland, this is an incredible opportunity to make a concerted impact on decision makers.

Scottish Parliament to host screening of Unrest – Invite your MSP to attend | 17 January 2018 Read More »

Unrest is being shown at an event for MSPs at the Scottish Parliament on 30th January 2018. If you live in Scotland, this is an incredible opportunity to make a concerted impact on decision makers.

Independent: Time for Unrest: Why patients with ME are demanding justice | 07 January 2018

A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.

Independent: Time for Unrest: Why patients with ME are demanding justice | 07 January 2018 Read More »

A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.

“It has taken my life” – Sheringham woman speaks out about living with the debilitating disease ME | 06 January 2018

“I was fit, I went rambling and went to the gym,” she said. “But ME has taken my whole life and any fulfilment I might have had.”

“It has taken my life” – Sheringham woman speaks out about living with the debilitating disease ME | 06 January 2018 Read More »

“I was fit, I went rambling and went to the gym,” she said. “But ME has taken my whole life and any fulfilment I might have had.”

Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018

This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.

Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018 Read More »

This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.

Website survey: What do you think should be our research funding priorities for 2018? | 04 January 2018

We believe it is important to obtain regular feedback from people with M.E. as to what they regard as the most important priorities for UK research.

Website survey: What do you think should be our research funding priorities for 2018? | 04 January 2018 Read More »

We believe it is important to obtain regular feedback from people with M.E. as to what they regard as the most important priorities for UK research.

Buzzfeed News: A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience | 30 December 2017

A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.

Buzzfeed News: A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience | 30 December 2017 Read More »

A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.

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