There was an hour-long discussion about ME/CFS on the Kaye Adams Show, BBC Radio Scotland, this morning. Click on the following link to find the replay, which will be available on the BBC iPlayer for another 29 days: www.bbc.co.uk/programmes/b081myv0#play
The keynote speakers were an American writer Julie Rehmeyer, whose book ‘Through the Shadowlands', will be published next April, and MEA medical adviser Dr Charles Shepherd.
Early Discussion starts at 1:38:40
Main discussion starts at 2.07.10
A version has also been placed on YouTube at www.youtube.com/watch?v=isyCfHVdSn0
The Kaye Adams programme on BBC Radio Scotland will be covering ME/CFS again on Monday morning (November 7). Kaye is best known for her regular appearances on the ‘Loose Women' daytime TV show.
Information from the programme:
The Kaye Adams programme on BBC Radio Scotland will be discussing ME this coming Monday from 11.05 with our medical adviser, Dr Charles Shepherd. They would welcome any comments, phone-calls and emails – particularly if you or someone you live with, has ME.
Please call 0500 92 95 00, text 80295 or email Kaye@bbc.co.uk from 8.30 on Monday.
Previous coverage of ME/CFS:
Kaye Adams programme – direct link:
I think it is a very good thing that there are no “specialist” ME/CFS centres in Scotland. Nobody need waste their time and energy on CBT and GET, no precious NHS resources are wasted on running anything.
It would have been good if the original (2009) Scottish guidelines (unwatered down by AfME to be compatible with NICE) had been published, but my own gp refused, point blank, to read either version anyway.
I would recommend folk to send a link to this interview to family and friends alike, as it highlights both the medical aspects of ME and the human toll.
And you did really well Charles. Thank you!
Keith Geraghty posted this on Twitter recently:
Ever experience adverse reactions to CBT or GET in CFS treatment? – email me @ Keith.geraghty@manchester.ac.uk – we want to hear your story.
https://twitter.com/keithgeraghty/status/795689606868062208
Thank you so much for doing all of this! I feel you work so hard to help us with ME and sometimes you are in a very difficult position. I would not want you to be treated by the GMC like Dr Nigel Speight and Dr Sarah Myhill have. Long may you carefully dodge all the obstacles. Many thanks again. I will certainly support your brilliant idea of Xmas Big Give being used to fund a metabolomics study to see if the Naviaux, Hanson, etc. studies can be replicated. Presumably without the help of the BPS groups and using the ME/MS Biobanks for samples?! Goes without saying really, I know.!