We are excited to be launching ME Connected – our online Discord community
The purpose of this Discord is to find connection and reduce feeling of isolation. Join for peer support, discussions of ME/CFS/LC and things that make you smile!
The ME Association
We're here for you…
The ME Association has been providing expert help since 1980. We understand the challenges faced by people with ME/CFS and Long Covid and believe that nobody should struggle alone.
Health Crisis
We estimate that at least 250,000 people in the UK have ME/CFS. In addition, a significant but unknown number of people diagnosed with some form of Long Covid also meet diagnostic criteria for ME/CFS. It represents a very real health crisis.
Based on past epidemiological research evidence we estimated that at least 250,000 people had ME/CFS in the UK. This figure is likely to be a significant under-estimate as a result of some people having remained undiagnosed or misdiagnosed, and more recently with people developing ME/CFS after catching Covid-19.
Research evidence also indicates that around 50% of people with some form of Long Covid (currently around 2 million in the UK) meet diagnostic criteria for ME/CFS. We are currently reviewing all the research evidence with a view to producing a new estimate that is still evidence-based and would be accepted by organisations such as NHS England.
More information
PVFS = Post-Viral Fatigue Syndrome
ME = Myalgic Encephalomyelitis/Encephalopathy
CFS = Chronic Fatigue Syndrome
Long Covid = Post-Covid Syndrome
Changing attitudes and improving lives…
The Latest News
Open Mind: Chronic Denial by David Tuller
MedRxiv: Preprint: Charting the Circulating Proteome in ME/CFS
‘Eight for A Mate!' marathon man crosses the halfway point
Popular music teacher gets set for Great North Swim
Hollie will be fighting her corner, hard!
Jack prepares for his fourth marathon in Australia
CAB Report: Pathways to Poverty: How planned cuts to disability benefits will impact the people we support
NHS Scotland adopts NICE NG206 in place of Scottish Good Practice Statement
Write to your MP about the recent announcements on Welfare Reform
Preprint: A Proposed Mechanism for ME/CFS Invoking Macrophage FcγRI and Interferon Gamma
They went Blue for ME – Richmond yoga group supports people with ME/CFS
New play about ME/CFS debuts at Cheltenham next week
PIP assessments for people with ME/CFS: DWP training and guidance for PIP assessors
Treating Long Covid and Post Covid ME/CFS with LDN
Postcard from Wotton-under-Edge – wish you could've been here!
NICE requires lay members to join their Prioritisation Board
Research: Cerebrospinal fluid immune phenotyping reveals distinct immunotypes of ME/CFS
Jack takes today's Great Ocean Road run in his stride!
Now it gets tough for our ‘Eight for a Mate! marathon man
New Resource: MEA video covering all you need to know about ME/CFS
More News >>
The Real M.E. Campaign
People with M.E. and Long Covid are demonstrating they possess the confidence to be seen and are raising more awareness than ever before.
We began the campaign in 2018 and featuring images of ‘real' people has had a very positive impact!
