One of our members would like some feedback – good or bad – on the effects that the following supplements have had on your ME:
Co-enzyme Q10 and Ginseng.
If you would like to pass on some comments, please contribute to the blog below (you will need to register to use it first) or email: meconnect@meassociation.org.uk If you are emailing, please type Website feedback (TB) in the subject line.
Having tried many agents including the above, I would be more interested in hearing about the effects of cannabis which has been used as a medicament for 5000 years but which more recently has been legally deprecated on the basis that alcohol and tobacco are much better for you.
Hi forthurst
You might be interested to click on the video link we provided in February when we ran a story about cannabis and ME:
https://meassociation.org.uk/?p=4756
Tony
I’ve tried both – with no effect. I took co-enzyme Q10 as part of a medically recommended regime (about 12 substances altogether) but it didn’t help.
The difficulty is that everything seems to help some-one, but there doesn’t seem to be any way of working out which will help a particular individual and which won’t.
We need the NHS to take our illness seriously and provide the necessary tests and appropriate treatments.
It’s a scandal that we still left in limbo, being denied effective treatment.
I have used both for several years plus many other supplements. Would recommend milder Siberian Ginseng (may not be a ‘proper’ ginseng) but would definitely endorse CoQ10.
Not a cure but an aid definitely. I have had ME for 25 years and also totally unconnected heart valve replacement last year.
CoQ10 has supported me in both and still does.
I have been taking 200 mg of Co-enzyme Q10 daily for several months, I have also been taking carnitine over the same period. I can’t be totally sure, but I do believe the Co Q10 in particular does help to increase my general energy and stamina to a degree, and that my body notices it the day after I forget to take it.
I have tried both with no effect.
I agree that taking Co Q10 helps, but you need to take much more of it than you might initially realise – in my case at least 100mg /day.
It has certainly helped me and wish I had known about it at an earlier stage in my illness.