Tag: Severe ME

It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.

ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!

We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…

The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…

A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.

Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.

Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.

Lou Wildish has put a selection of her unique art into a new online gallery and is giving a donation from each sale to the ME Association.

“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”

Caring for someone with Very Severe M.E is both an honour, a privilege and a responsibility so difficult it is similar to walking through a field of landmines, not knowing if the next step you take no matter how important and necessary is going to have devastating consequences. My name is Clare and I was […]

The 8th August is Understanding & Remembrance Day for Severe Myalgic Encephalomyelitis, also known as Severe ME Day. It is held on the birthdate of Sophia Mirza, who was the first person in the UK to have their cause of death registered as Very Severe ME. Unfortunately, she is not the only one who’s died […]

“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”

It all started for me in 1992, when I was 29. I got pneumonia and pleurisy, was in bed for a month and there began my nightmare. I developed skin rashes and inflammation in my ribs, spreading all over. I was diagnosed with Lupus. A year later I was suffering attacks of muscle pain, fevers […]

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”

‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…

Katie Meehan, Social Media Manager In the run-up to Severe M.E. Week (3rd August), we’re looking for people with Severe M.E. who would like to tell their stories. We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on raising awareness throughout the week commencing Monday, […]

Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”