Tag: Management

Charlie Russell, 27, is one of an estimated 600,000 people with post-Covid illness, a condition that may give an insight into ME – with Dr Charles Shepherd.

Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.

Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

The response from Stephen Powis at NHS England to the MEA’s concerns is very disappointing and dismissive…

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.

Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.

Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.

Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!

The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!

In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.

The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.