MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Management
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
Thank you for helping with our formal response to NICE!
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
The Lancet still doesn’t seem to recognise the surge in post-COVID ME/CFS illness
We take issue with an editorial about the long-term effects of Long COVID in this weekend’s edition of The Lancet.
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
All-Party Parliamentary Group on M.E. Invite Your MP to Attend November Meeting
Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
ME Association response to BACME Position Statement on the Management of ME/CFS
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
New ME/CFS Medical Education Initiative Launched in Scotland
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
News & Comment: The Long-Covid Crisis and £10 million on NHS Specialist Clinics for Post-Covid Sufferers
The ME Association appeared in several media publications at the weekend sharing opinion about Long-Covid and the proposed new specialist clinics.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
“I was infected with coronavirus in March, six months on I’m still unwell,”
Charlie Russell, 27, is one of an estimated 600,000 people with post-Covid illness, a condition that may give an insight into ME – with Dr Charles Shepherd.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.