Tag: Management

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.

The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

This free download provides information to help in the understanding of Myalgic Encephalopathy.

Post-viral fatigue is being reported following Covid-19 infection. We explain the issue and offer best management guidance.

Sharing your story is one of the best ways we have of improving understanding and awareness of M.E.

We have listened to your feedback and can now provide an updated guide to the most important aspects of management.