Tag: Management

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.

Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.

Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.

Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!

The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!

In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.

The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

This free download provides information to help in the understanding of Myalgic Encephalopathy.