The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
Tag: Management
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
Now Available: The 2020 ME Association ME/CFS/PVFS Clinical and Research Guide!
It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
Severe ME Week: How might healthcare be improved?
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
My Mummy and M.E. by Holly Peretti
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, and ME/CFS
Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.
A challenge where YOU can help to drive change in medical attitudes towards ME!
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
Out Now! The Summer Issue of ME Essential Magazine!
The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
The DecodeME Genetics Study: Letters to The Times
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The New NICE Clinical Guideline on ME/CFS to be Published in April 2021
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
ME Awareness: The Lost Years: Missionary forced to give up vocation to do battle with ME | 18 May 2020
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
ME Awareness: What you need to know about M.E. | 01 May 2020
This free download provides information to help in the understanding of Myalgic Encephalopathy.