ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation
Implementation of the NICE Guideline has clearly failed in these and other hospitals…
It might be wild out there, but Katy is definitely one of the good guys!
It might be wild out there, but Katy is definitely one of the good guys! Read More »
Next Saturday (27th April) a charismatic, young woman with a
Opportunity for people with ME/CFS and Long Covid to engage with Scottish Government
Opportunity for people with ME/CFS and Long Covid to engage with Scottish Government Read More »
Opportunity for people living with ME/CFS to engage with Scottish
Neurology Today: Are ME/CFS and Long Covid part of the same disorder?
Neurology Today: Are ME/CFS and Long Covid part of the same disorder? Read More »
“We believe these are virtually the same disease…” Avidra Nath NINDS.
The ME Association: Are people with ME/CFS eligible for a Covid booster vaccine?
The ME Association: Are people with ME/CFS eligible for a Covid booster vaccine? Read More »
ME/CFS is not on the list of named immunosuppressed conditions…
Open Access Government: The silent struggle for Long Covid patients
Open Access Government: The silent struggle for Long Covid patients Read More »
Long Covid is estimated to cost the UK economy £1.5bn each year…
East Sussex mum pedals up a cycling storm at her gym
East Sussex mum pedals up a cycling storm at her gym Read More »
A mother will pedal up a cycling storm for the
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS Read More »
The research found significantly elevated Glutamate and N-acetyl-aspartate levels in Long Covid and ME/CFS…
Website survey: Irritable Bowel Syndrome (IBS) Awareness Month
Website survey: Irritable Bowel Syndrome (IBS) Awareness Month Read More »
IBS is often experienced with other conditions including ME/CFS, Fibro, and Long Covid.
Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation
Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation Read More »
ME/CFS Research Lord Hunt of Kings Heath Labour asks the following
Science: Long Covid treatment trials and lessons in persistence
Science: Long Covid treatment trials and lessons in persistence Read More »
New Long Covid trials aim to clear lingering virus—and help patients in dire need
Beyond Radio: Family stages protest outside Lancaster hospital calling for teenager to be allowed home
The worried family of a seriously ill teenager have staged
Moving house when you have ME/CFS
Moving house when you have ME/CFS Read More »
Moving house can be stressful but add ME/CFS into the mix and the challenge of moving is multiplied 10-fold…
The ME Association Disability Rating Scale
The ME Association Disability Rating Scale Read More »
An improved version of the Disability Rating Scale that can be used by people with ME/CFS and Long Covid.
The ME Association: Raynaud’s Disease Website Survey Results
The ME Association: Raynaud’s Disease Website Survey Results Read More »
“Raynaud’s phenomenon is where your blood stops flowing properly to
Visible: The pacing app for people with ME/CFS and Long Covid
Visible: The pacing app for people with ME/CFS and Long Covid Read More »
Visible is a free mobile phone app designed for those suffering with ME/CFS or Long Covid.
Patient Reported Outcome Measures (PROMs) in ME/CFS
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Physio’s for ME achieve funding success for vagus nerve study!
Physio’s for ME achieve funding success for vagus nerve study! Read More »
Physio’s for ME We are thrilled to announce that we
BBC News: Long Covid blood clues could prompt future trials
BBC News: Long Covid blood clues could prompt future trials Read More »
People with long Covid have evidence of continuing inflammation in their blood..
Seven years on and Richard asks for a momento of his achievement
Seven years on and Richard asks for a momento of his achievement Read More »
A running hero of ours from yesteryear has got in