An incomplete picture: understanding the burden of Long Covid
An incomplete picture: understanding the burden of Long Covid Read More »
An international report examining the impact of Long Covid with recommendations to improve health outcomes.
Westminster Hall Debate: When will the Final Delivery Plan on ME/CFS be published?
Westminster Hall Debate: When will the Final Delivery Plan on ME/CFS be published? Read More »
We can now expect the Final Delivery Plan on ME/CFS later this year hopefully.
Research: More than a quarter of people infected by Covid develop Long Covid
Research: More than a quarter of people infected by Covid develop Long Covid Read More »
The researchers are calling for yearly Covid-19 vaccinations to be rolled out.
Hertfordshire ME/CFS Support Group: ME Awareness Day at St Albans Museum and Gallery
Hertfordshire ME/CFS Support Group: ME Awareness Day at St Albans Museum and Gallery Read More »
On Sunday May 12th the Hertfordshire ME/CFS (Myalgic Encephalomyelitis and
Parliamentary Questions: Inpatient provision, hospital knowledge of NICE Guideline, and DHSC Delivery Plan on ME/CFS
Andrew Stephenson answers questions from Seema Malhorta in parliament.
Australia ignores the NICE guideline recommendation to stop prescribing GET to people with ME/CFS
Doctors in Australia still recommend GET despite NICE guidelines.
Does diabetes increase the risk of long COVID?
Does diabetes increase the risk of long COVID? Read More »
Are people with a history of Diabetes more susceptible to Long Covid?
The ME Association is an official supporter of Carer’s Week 2024!
The ME Association is an official supporter of Carer’s Week 2024! Read More »
Carer’s Week 06 June – 16 June 2024 Each year
ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation
Implementation of the NICE Guideline has clearly failed in these and other hospitals…
Opportunity for people with ME/CFS and Long Covid to engage with Scottish Government
Opportunity for people with ME/CFS and Long Covid to engage with Scottish Government Read More »
Opportunity for people living with ME/CFS to engage with Scottish
Neurology Today: Are ME/CFS and Long Covid part of the same disorder?
Neurology Today: Are ME/CFS and Long Covid part of the same disorder? Read More »
“We believe these are virtually the same disease…” Avidra Nath NINDS.
Open Access Government: The silent struggle for Long Covid patients
Open Access Government: The silent struggle for Long Covid patients Read More »
Long Covid is estimated to cost the UK economy £1.5bn each year…
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS Read More »
The research found significantly elevated Glutamate and N-acetyl-aspartate levels in Long Covid and ME/CFS…
Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation
Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation Read More »
ME/CFS Research Lord Hunt of Kings Heath Labour asks the following
Science: Long Covid treatment trials and lessons in persistence
Science: Long Covid treatment trials and lessons in persistence Read More »
New Long Covid trials aim to clear lingering virus—and help patients in dire need
Beyond Radio: Family stages protest outside Lancaster hospital calling for teenager to be allowed home
The worried family of a seriously ill teenager have staged
Moving house when you have ME/CFS
Moving house when you have ME/CFS Read More »
Moving house can be stressful but add ME/CFS into the mix and the challenge of moving is multiplied 10-fold…
The ME Association: Raynaud’s Disease Website Survey Results
The ME Association: Raynaud’s Disease Website Survey Results Read More »
“Raynaud’s phenomenon is where your blood stops flowing properly to
Visible: The pacing app for people with ME/CFS and Long Covid
Visible: The pacing app for people with ME/CFS and Long Covid Read More »
Visible is a free mobile phone app designed for those suffering with ME/CFS or Long Covid.
Patient Reported Outcome Measures (PROMs) in ME/CFS
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…