The ME Association: Raynaud’s Disease Website Survey Results

“Raynaud's phenomenon is where your blood stops flowing properly to your fingers and toes. It's common and does not usually cause severe problems. You can often treat the symptoms yourself by keeping warm. Sometimes it can be a sign of a more serious condition.”

NHS Website Patient Information

Website Survey Results

Please see the results of our February website survey below:

Symptoms of Raynaud’s disease can include:

  • extreme sensitivity to cold
  • white fingers and toes
  • poor circulation
  • pain
  • numbness
  • pins and needles 
  • skin problems/deterioration
  • tingling and throbbing (when circulation improves)

Scleroderma and Raynaud’s UK (SRUK)

SRUK is the only national charity dedicated to improving the lives of people with scleroderma and Raynaud's disease/phenomenon.

“Raynaud's disease (Ray-nodes) means that the small blood vessels in the extremities such as the hands, feet, fingers or toes are over-sensitive to even the slightest changes in temperature, cold conditions and sometimes emotional stress.”

“In some cases, it is another health condition that causes the blood vessels to overreact, leading to Raynaud's symptoms. This is called secondary Raynaud's. The chances of having secondary Raynaud's are very low, since only 10% of people with Raynaud's will develop an associated condition.”

Scleroderma and Raynaud's UK

More information

The ME Association has a free information booklet that provides detailed information and guidance on the management of cold hands and feet in ME/CFS:

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