Martine Ainsworth-Wells Read More »
Martine is also the charity’s Campaigns Director and works with Team Creative and external agencies to plan and implement initiatives that aim to drive the charity forward in more focused and effective ways
John is a distinguished English composer and conductor associated mainly with choral music. He developed ME/CFS after contracting Chicken Pox from his son and was badly affected for many years
Glenys became a volunteer with ME Connect in 2006 having had to give up her job as a primary school teacher due to Fibromyalgia and ME/CFS which were diagnosed in 2001
Ewan has had ME/CFS since 1989 after contracting a ‘flu-like’ illness that meant he had to give up his career. n He joined the charity as a Trustee in 2004 having been involved in local advocacy efforts
Debbie has worked for the ME Association for just over 3 years and really enjoys the varied, caring work and being part of a lovely team. She loves the opportunity to make a positive difference to people’s lives
He provides expert advice to people with the condition following a referral from ME Connect and offers a 30-minute initial consultation for free. David also contributes to the literature produced by the charity and to ME Essential when his other work allows
In 2002 he was asked to take over and run IT services for the ME Association. In 2012 he became an Associate Trustee and in January 2023 he was appointed a Full Trustee.
He is involved on an almost daily basis and is a member of the charity’s ‘Audit, Investment, and Risk Committee’, advising and assisting on the financial and smooth running of the charity
She became Deputy Chair of the All-Party Parliamentary Group on ME (APPG), established and chaired Forward-ME and has had a distinguished career advocating for ME/CFS
Dr Charles Shepherd Read More »
Charles coordinates the Ramsay Research Fund, writes much of the charity’s medical literature, comments on social media, regularly contributes to the charity’s magazines, attends conferences and external meetings, and provides interviews and expert comment to the press.
She is designer and editor of both ME Essential and ME Medical magazines and the charity’s medical literature
Her role includes helping with new memberships, renewals, and donations, dealing with queries on the phone, liaising with suppliers and employees of the charity, and taking payments and orders for merchandise from the shop
Helen is responsible for downloading and processing website shop orders and dealing with emails received by Head Office. She maintains the charity’s central membership database and generates the renewal and reminder letters and helps with Gift Aid reclamations
She has been an independent welfare rights adviser since 2006 and joined the ME Association in July 2021. Ella aims to make understanding of the benefits process easier and to give people with ME/CFS (and Long Covid) the tools they need to get the help they deserve.
Worked as an investment manager in private banking before developing ME/CFS.
Neil has been chairman of the Trustees since 2004 and has a legal background
