Patient Reported Outcome Measures (PROMs) in ME/CFS
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Physio’s for ME achieve funding success for vagus nerve study! Read More »
Physio’s for ME We are thrilled to announce that we
BBC News: Long Covid blood clues could prompt future trials Read More »
People with long Covid have evidence of continuing inflammation in their blood..
Seven years on and Richard asks for a momento of his achievement Read More »
A running hero of ours from yesteryear has got in
Recommendations that people with long COVID, or post-COVID condition (PCC),
Deborah wants to say absolutely nothing on World ME Day Read More »
Deborah Jenkins has promised to shut up. Not to say
Millie McAinsh says she’s ‘constantly hurting’ and claims doctors ‘won’t listen’ to her wishes…
Queensland health apologises over Long Covid comments Read More »
Queensland’s Acting Chief Health Officer this weekend apologised for the distress caused by the research..
Researchers develop online tool for Long Covid Read More »
An online tool to support people living with Long Covid aims to encourage people to seek help from healthcare professionals…
RCoA: Podcast: The perioperative management of patients with ME/CFS and Long Covid Read More »
Anaesthesia On Air, the podcast from the Royal College of Anaesthetists about ME/CFS and Long Covid.
Is Low Cortisol a Marker of Long Covid? Read More »
Low levels of cortisol are now being reported in Long Covid. This review is questioning the validity of these findings…
Jessie will be Hannah’s shining star in half marathon! Read More »
Two best pals who have stood by each other through
Job done! But please keep us in the frame for the next round Read More »
TOGETHER, WE DID IT! WE WON £1,000 IN THE LATEST
Cambridge: Long Covid costs UK economy £1.5billion each year! Read More »
Cambridge macroeconomics‘ new report draws on the latest available evidence
Appearing on Channel 4’s Location, Location, Location, while living with ME/CFS Read More »
“I felt from the beginning that there was a strong desire from the whole team to not only understand what I was living with, but to help me in any way they could.”
Byline Times: ‘A Rollercoaster Of Awful Emotions’ Read More »
Millie McAinsh’s family sought help when the ME sufferer could no longer eat – only for her to to be sectioned…
Led by neurologist Avindra Nath, MD, the researchers report several physiological differences between people with ME/CFS and healthy volunteers.
Failings in the care of patients with Very Severe ME by Dr Nigel Speight Read More »
In the UK over recent years there have been a succession of cases of very severe ME who have been mismanaged by the medical profession, in the worst cases with fatal consequences.
Open Access Government: Understanding the impact of ME/CFS with Dr Charles Shepherd Read More »
ME/CFS is a disabling, multisystem, and often long-term illness that involves the brain, muscle, and immune system.
Australia: ‘Long Covid may be no different from other post-viral syndromes’ Read More »
Queenland’s Chief Health Officer Dr John Gerrard, said it was “time to stop using terms like ‘long Covid”…