News

Name Change Committee: ME/CFS gets the nod

The CFS Name Change Advisory Board (NCAB) has amended its initial proposal and now recommends that the name for ‘chronic fatigue syndrome’ be changed to the acronym ME/CFS. (Note: Many illnesses are known by their acronym – e.g., HIV.) The resolution modifies their earlier recommendation that the ‘ME’ in ME/CFS should stand for Myalgic Encephalopathy.

Financing a judicial review of the NICE guideline on ME/CFS

The ME Association recently received an email from the One Click  Group asking for a contribution towards the costs of bringing a legal action for judicial review of the NICE Guideline on CFS/ME. The Association has been asked by members for its view on whether such a contribution should be made.

Inquiry into NICE: final hearing

The Health Select Committee of the House of Commons will hold its final day of evidence in its inquiry into the National Institute for Health and Clinical Excellence (NICE) on Thursday, November 8.

Closure of The MEACH Trust

In view of questions being asked, and the absence of any public statement, The ME Association asked the Charity Commission (CC) a number of questions last week regarding the decision to dissolve the MEACH TRUST charity on 21 August 2007.

Activive – regulatory update

A few months ago The ME Association started receiving queries about the medicinal claims being made for a product called Activive that was being sold over the internet.

Steve Craig’s online art gallery

From the October issue of The ME Association’s quarterly magazine, ME Essential, published this weekend. An artist, poet and teacher who went down with ME has opened an online art gallery to show his work. 

ME/CFS occupational health guidance under review

From the October issue of The ME Association’s quarter magazine, ME Essential, published this weekend. A total of 25 ME charities and groups have now signed up to a statement repudiating the NHS Pus occupational health guidance for ME/CFS as "insulting to many people with this illness who have fought tooth and nail to keep […]

Please send a letter to your MP

To find out who your MP is click here and type in your postcode To download a copy of our latest political briefing paper, click here  Please help us raise the profile of ME in Parliament.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.