News | The ME Association - Part 193

Letters page, The Sun, May 12

Dear Sir It was a bad day for children when ME got called by the barmy name ‘Chronic fatigue syndrome’. Some of our children can’t speak or swallow and have to be tube fed. That is so not ‘fatigue’. That is devastation. Jane Colby Executive Director The Young ME Sufferers Trust

Look in on our ME-relevant advertisers

Our advertisers include a Welsh company that makes chemical-free mattresses, a holiday and retreats centre in Gascony, an ammonia-free hairdresser in Keighley (West Yorkshire) and an electric bike company helping people enjoy their pedal-power. They’re all relevant to people with ME/CFS and their carers. Click here to visit them  

‘What it really means to be healthy’

From The Guardian, May 6 After a bout of glandular fever at university, Keith Kahn-Harris developed chronic fatigue syndrome, from which he still suffers. He explains how this debilitating and misunderstood illness has changed his life for ever.

Royal Society of Medicine meeting on CFS

MAY BE REPOSTED As previously announced, The ME Association was allowed to set up a display stand at the meeting on Chronic Fatigue Syndrome (NB: no mention of ME in the official title) for health professionals (only) that was held that at the Royal Society of Medicine (RSM) on Monday 28 April.

NICE guidelines on ME/CFS – research outcomes

Sutton and Cheam MP Paul Burstow, who is the Liberal Democrat chief whip in the Commons, put down a written question for the Health Secretary about research outcomes of the National Institute for Health and Clinical Guidance clinical practice guides for ME/CFS, which were published in the Autumn of last year. He received a written […]

Take part in survey into state of the nation’s healthcare

The Open University in conjunction with the BBC have launched an online survey into the state of the nation’s healthcare. People taking part will be asked to say what they think of services they receive from both conventional healthcare (GPs and dentists, for example) AND from the complementary and alternative practitioners.

ME sufferer scoops TV quiz fortune

A woman suffering from chronic fatigue syndrome experienced a turnaround in fortune after she lost her job but then reached the final round of TV’s Who Wants To Be A Millionaire? the next day.


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